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When you are diagnosed with Cancer the last thing on your mind is work.
Then you wake up and realise, if I do not work who will pay my bills.
If you work for a company who quite legally works within the framework of SSP do not count on getting any help.
everything went so well yesterday....
The staff at rosemere were the best...they kept me informed and relaxed through it all...
MRI at 8am.....then measured up and a face mould and cushion made.....it really was like having a facial.
went home for a couple of hours...soon as i got back the staff were there to tell me what happens next....
4pm they started......the mask was a bit tight to start with but after breathing it warmed up.
I wasn't left alone much...lights were on most of the time....
Well we are getting better at this stuff. Armed with a million questions, we trotted off for only the 3rd consultation with the oncologist since my husband's diagnosis. You'd think I'd be quite good at this sort of thing by now, having spent the last 3 years accompanying my husband to consultant appointments after his accident and after the same sort of thing with my Ma, who died in the summer.
Rubbish. Each occasion is different. Each condition has its own jargon. Ask me if I'm wiser...
I'm now well into my second cycle of chemo - just finsihed the 3-day inpatient part, and got my first outpatient appointment this Thursday.
If anything the 2nd cycle has been easier than the first - part of that was knowing what to expect, taking what I needed to the hospital, being in a smaller ward, and definittely being in better digestive health at the start. I should also acknowledge the two fine gentlemen in the ward with me who kepy me entertained - Eric 'the Bed' (81) and 'Chamois' Alan...
What a horrible and stressful morning......
Went to hospital to have the prone stereo(whatsit) mammogram and biopsy only to be told "sorry you are at the wrong hospital" despite the fact I had been told I had to go to Crawley as the East Surrey did not do prone mammogram blah blah blah.
Apparently, yes Crawley does have the prone mammogram equipment but it is still under testing so they are not taking patients for it yet. Got extremely upset but then a lovely lady sorted me out a cup...
Terence John Hamblin 1943 – 2012 Professor T Hamblin (DM, FRCP, FRCPath, FMedSci) Peacefully passed away shortly before 1.00 AM on Sunday 8th January 2012. Dr. Hamblin's biography (from his blog).
Today went quite well at the hospital. Pat made a short list of things he wanted to ask. It is what he calls his 'Aide memoire' as his memory with Parkinsons is not so good nowadays at times. We go in as a couple but it is his consultation and I only chip in is he asks me or at the end if there are any other questions that I want to ask.
The plan is to continue with the Octreotide injections and now go up to the full dose next Monday. It transpired that the blood and urine tests we were...
Rough sleep last night, well tell a lie after 2 paracetamol, 2 codeine and a diazipam I was comotose.
Managed to do something nasty to my right trapeziam (is that spelled correctly?) and couldn't lie down to sleep to slept sitting up right on the sofa.
Worked out what happened, had one of the dogs on a lead (3 legged one) while hubby threw the ball for the other two but mine took off like a bolt lightning and of course wrenched my right shoulder. Now I am in agony and have hospital this morning...
The NHS can really leave me feeling massively let down sometimes. Some say things to you that they either don't mean or they are too forgetful to actually do their jobs properly. It's just so aggravating.
Perhaps they don't realise how much we hold on to things, especially what is likely to happen next with our care. When I get told to make an appointment for 6 months time so they can run blood tests and scans, you can bet that those words will rattle around my head everyday for the next...
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