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Right here right now I’m feeling quite mellow, let’s say cautiously positive, things could be heading in the right direction, maybe for the first time since my journey with melanoma began. I hesitate to be overly positive as we all know how cancer has a habit of not conforming
I’m receiving immunotherapy treatment on a 28 day cycle of Nivolumab infusions and have the second one coming up this week. I previously completed four rounds of combination ipilimumab and nivolumab combined infusions...
We’re back on the treadmill. I’m now on cycle 3 (out of 4) of Irinotecan by IV followed by 14 days of Capecitabine. This has gone largely side effect free. I’ve had a bit of nausea, but the major issue has been fatigue. There have been days when I’ve just wanted to sleep.
I’ve also completed 5 sessions of radiotherapy on my sciatic nerve. The process was very easy. The only issue I had was that they put 3 small tattoos on my abdomen which they use to line up the machines to...
I posted the following info in a discussion thread in the Living with incurable cancer group and I wanted to keep a reference to it, so here it is.
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With reference to hospice end-of-life care that doesn't always deliver a peaceful death, I found this, from Nov 2017, on the Dignity in Dying website.
https://features.dignityindying.org.uk/true-cost-dignitas/
The full report is at https://www.dignityindying.org.uk/wp-content/uploads/DiD_True_Cost_report_FINAL_WEB...
It is now six weeks since my mastectomy. I felt quite sore and uncomfortable at first and had to have the area drained twice a week for a month by which time I felt a lot better. Three weeks after my operation I saw the senior breast nurse who told me that the biopsy was clear and the tumour had shrunk by 84 % with the chemotherapy, the remainder had been removed removed.The lymph that had been tested was also was clear. A few days later I had an appointment with my surgeon and he confirmed everything...
In case you missed it, earlier this year we introduced ‘Wellbeing Wednesday's’ – the day of the week where we bring to you our weekly tip on improving your wellbeing; be helping improving sleep, coping with stress, or a couple of mindfulness tips to help you look for the positives throughout the day.
It’s last day of February today, so here’s a summary of our tips to date:
Mindfulness:
Mindfulness is the basic human ability to be fully present, aware of where we...
The first time that I woke up on the 16th, the day after 'the news', was at around 5am. I broke into tears and started to sob. Kels comforted me and helped to bring me away from that state.
I managed to go back to sleep for a little while. I woke up at 9ish (I think). The plan for the day was to go and spend time with mum and dad at the hospital until early to mid afternoon. Get some more day parking permits for their car (our council charge £2 per ticket and they only last up until midnight...
https://theysaythiscanhelp.home.blog/2019/02/20/c-day-and-the-oblivious-build-up/
I am not sure, at present, what I hope to get out of using this site/process. I have heard that it’s theraputic, a release, a way of exploring your own feelings and thoughts. As well as a way of letting others understand how you are feeling, providing an insight perhaps or a way of connecting with others that may have experienced something similar.
Anyhow. Here goes.
15/02/2019 - The day we found out that my dad...
This is a song I've had on my "to do" list for several months. I finally made a start on it today.
The song was new to me until I heard it mentioned by Peggy Seeger in the audiobook of her memoir, "First Time Ever".
The version I've learnt from is a recording by Lead Belly that I found on YouTube. I like the mournful style of the song and Lead Belly's singing. There's also a great version by Ry Cooder on YouTube... I love the downbeat mood and the way the band...
I am now almost four weeks post op and have recovered really well. I worried about how I would cope with eating and how it would impact on my life!
I have found all the advice on this Forum invaluable as sharing tips and experiences has really helped . So I am writing this blog as it may help others.
Physically I am still building up my strength and walk everyday. I can now manage 2 to 3 miles! I am tired at night and sleep well. During the day I just try to make sure I have a rest if I have been...
Getting scan results can be awkward even if you have everything worked out in your head that what ever is said is positive because you will be moving forward. I find it’s awkward if you are given a curve ball though as it’s difficult to listen, when you are trying to compare expectations you have to what is being said. my last scan results were stable, and the last time they were stable in 2016 it was immediately followed by the next scan results being a progression. I also had in my head that the...
