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Another emotionaly exhausting day.
Got to hospice and mum was so much more settled today, dosed up on whatever. She was sleeping soundly, just with the occasional ramble.
There was a lot of us there this afternoon, mainly immediate family. I told my brother that I no longer want other people visiting Mum, I don't want them there, this is our time now. Feel selfish, but it's what I want. Mum's had days where it's exhausted her with the numbers of people coming, that's the down side of open...
23/3/18 My Sis went into hospice for some respite care.She was spitting up white froth and gagging every few minutes.So a stent was inserted 7/4/18 and that did stop the spitting up and gagging.But it is painful for Sis all time where stent was inserted, she says only time she is without pain is when she is asleep Hospice say this should get easier,but I have my doubts,though I will not pass my doubts on to Sis.Drinking a little and has even enjoyed a liquidised doll sized meal,so that was good.Sis...
Exhausting and emotional day. Up until yesterday mum was aware and coherent, but thats all changed. I feel i now understand my mum's actions last night. I'm sure she was saying goodbye to me. She may still be here physically, but my mum has gone.
Had a phone call this morning from the hospice, mum had become very confused and not aware of where she is. They didn't want us to be alarmed when we arrived, it could be distressing. When I arrived at 11am she kept asking where she was and seemed...
The Phoenix Rises
Imagine the feeling just after Christmas 2016 when I felt a lump in my left breast. Ahhhhhhhhhhhh.
The message from the media is to get these matters checked out ASAP.
I was referred to the Breast unit at Broomfield Hospital and had an ultra sound and biopsy in March 2017. The early indication was that I had a “malignancy which would need treatment”. Despite the absolute professionalism and kindness from the Biopsy team tears did follow; given the “shock” as I had hoped it was just...
Mum was worn out today, had so many visitors, 12 in all, too many really. That's the down side to having open visiting, at one point there were 7 of us. Everyone means well, and it's lovely that they want to see mum, but it's just so tiring for her.
Mum's room is lovely, with views over the garden, but because of the pain she is in she couldn't turn her head to see it, so the nurse did the next best thing- she turned mum's bed round to face the window. I'm not sure if mum was bothered...
Long day at work today, got so much to do, feels like I've put it first, but need to spend some time helping sort things for an audit. Some unexpected rule changes have come to light and s**t could be hitting the fan. Failing the audit could mean problems for us, big problems, so selfishly I'm thinking long term. Can't afford to have to think about having to find another job. Managed to go a little early, so got to mum at 4.45, and spent a couple of hours with mum. She's hooked up to morphine...
Mum was transferred to a hospice today, it's a short stay unit, usually for a couple of weeks. If her symptoms plateau it's likely she will be moved to a nursing home, but they won't move her if her condition worsens. I don't want her to go to a nursing home, so I'm struggling with the alternative.
Disappointed I wasn't at hospital this afternoon when lady from hospice came to speak to mum & my brother. I would have liked to hear first hand what's on offer, I was supposed to but my brother didn't call me. Have found he hasn't been taking everything in & mum is dosed up on morphine so not sure of full facts. Hospice can only take people for 2 weeks apparently, but mum & brother have contradicted themselves. If more than 2 weeks care needed it's done at a care home. Or you start at a care home...
I had no idea where to put this, as it doesn't really fit into any of the groups on site. But then, I guess I don't really fit into any one group on site.
Today is a bad day.
I was all geared up for yesterday, expecting to be called by the Hysteroscopy nurse to tell me how we are going to proceed with treating the womb cancer and what my biopsy showed - but she never called. So I'm still in limbo, not sure what's going on inside of me and with no plan on how to fix it. ...
It has been two months since I last posted. I have been going for my lymphatic drainage massages every Friday. I feel so blessed to be alive and well. This week will be my last session and I will miss the conversation I had with the specialist for that hour I am relaxing in her bed. Back at work things were not as I imagined but all will be sorted in time. When I was diagnosed I never felt like a victim and now after mastectomy I don't feel like a victim. I look at my scars and see life. To me it...
