My journey

  • The new regime

    FormerMember
    FormerMember

    I started my new regime (Folfox and cetaximab) last Friday. I thought I’d leave it a week to settle down and see how it goes.

    Firstly though I do have to mention my PICC line. The fantastic staff at Northampton General went through everything they were doing to me and more importantly why they were doing it. I had had 5 sessions of Oxylaplatin through a cannula and each time I had quite severe pain both during the…

  • Taking the plunge

    FormerMember
    FormerMember

    I’ve decided to take up the offer of changing my chemo regime to Folfox plus cetuximab.

    It wasn’t an easy decision and whether it’s for the best I may never know but the decision’s made.

    I’m currently on a cycle of CAPOX which ends this Friday and my new regime starts the following week. I’ve tried working out a timetable so I can let work know when I’ll be about but until I know how the chemo…

  • Decisions, Decisions

    FormerMember
    FormerMember

    I finally had the results of my scan on my liver. The tumour has shrunk but is only deemed to be borderline for surgery. Therefore they have recommended a further three months of chemo.

    I was initially very disappointed as the only way I will be ‘cured’ is with surgery to both my rectum and liver. But I have to go with the experts in this. The good news is that the chemo has been doing its job.

    I went to see…

  • Results day......well nearly

    FormerMember
    FormerMember

    After my scans earlier in the week I had my appointment with the oncologist yesterday afternoon.

    I have to admit I was dreading it! Lots of anxiety and worry throughout the week.

    I was called in and saw a fourth different doctor. Ho hum.

    The upshot is that the tumour in my rectum has shrunk sufficiently for surgery! Hooray!! This will be operated on by the colorectal team at my local hospital.

    However, the liver team…

  • End of chemo.....perhaps for now

    FormerMember
    FormerMember

    I finished my forth cycle of chemo 12 days ago. The idea all along was to have the four cycles of Capox and then rescan to see if the tumours on my rectum and liver had shrunk enough for surgery to go ahead.

    I finally had my scans today (MRI and CT). All has gone well but why oh why does the fluid I needed to take (1 litre of the stuff) have to taste of aniseed. I can't believe that the manufacturers think aniseed is…