Taking the plunge

1 minute read time.

I’ve decided to take up the offer of changing my chemo regime to Folfox plus cetuximab.

It wasn’t an easy decision and whether it’s for the best I may never know but the decision’s made.

I’m currently on a cycle of CAPOX which ends this Friday and my new regime starts the following week. I’ve tried working out a timetable so I can let work know when I’ll be about but until I know how the chemo will affect me I can’t really say. I know when I’m in hospital for infusions but we’ll have to play the rest by ear.

I can’t say I’ll be sad to see the back of CAPOX. This last session has been quite hard. My fatigue levels have noticeably increased and there are certain days when I find it difficult to function.

I had a really enjoyable weekend with my brother in Yorkshire but on my return home was zonked out for 3 days barely moving from my armchair. I’m better now and went into work yesterday.

Work have been very supportive to me and I really enjoyed going in to see friends and colleagues. I suppose it’s a bit of normality when I can concentrate on something without the ever presence of cancer. It takes over your whole life. Every decision you make, every plan you want to make it’s there. Now Christmas is on the horizon you get asked what plans you have. I can’t answer. I don’t know how I’ll be feeling from one day to the next so trying to imagine how I’ll be in 3 months time is impossible.

Hopefully when the new chemo starts I’ll have more of an idea. I’m due to have my PICC line fitted next Wednesday and I’m trying to think of each hospital appointment as something positive and another step forward with my treatment.

One day at a time.

 

Anonymous
  • FormerMember
    FormerMember

    Hi Pete, I will make this short as on my mobile.  My husband had Cetuximab last year for tonsil cancer. He not only had amazing results but virtually no side effects except a bit of thinning hair. I know not everyone is the same but thought you might like some positive responses. I wish you loads of luck. 

    Fran

  • FormerMember
    FormerMember

    Thanks Fran,

    If the only side effect is thinning hair I can take that.

    Hope all is well with you and I'll let you know how it goes.

    I can't help but think this is the start of a new adventure.

    Take care

    Pete