Community News - Macmillan Online Community

Brain cancer Awareness month- Simon's Story

Simon is 45 years old from South Wales and today he is sharing his cancer experience as part of Brain cancer awareness month. If you or someone you know has been diagnosed, our Brain cancer groups are here to support you. I have had poor health most of my life due to a neurological condition called Neurofibromatosis. When in my teens I had lots of problems with my bowels and lived with a stoma bag for a year and had a total colectomy which is the removal of the large bowel. This was down to benign tumours in my guts. After this, my mother was told I wouldn’t live to see my twenties but happily, I proved medics wrong. At twenty I was diagnosed with testicular cancer. It was discovered straight away, and I had an operation to remove the left testicle, it was all I needed. As years went by…

Megan- Online Community Team
Being bodies: sex and erectile dysfunction

Our new series “Being bodies” aims to explore our relationships with our bodies, from head to toe and everything in between. We’re kicking off our series by talking about erectile dysfunction, which affects up to 80% of people with penises after pelvic cancer surgery. Erectile dysfunction (ED) can also affect people on treatments which affect their hormone levels. This can include people who have been diagnosed with prostate cancer and penile cancer, amongst others. ED can affect people for lots of different reasons, both physical and emotional. It can have a big effect on people’s sex lives, relationships and self-esteem. If this is you or your partner, you’re not alone. Today we’ll be discussing this with the help of quotes from Lorraine, a nurse specialist and sex therapist. “There is…

Eliza -Online Community Team
March: Brain Tumour Awareness Month

It's Brain Tumour Awareness month in March, so in this Community News Blog, we'll be highlighting related content in the Community and signposting to useful resources. We know it can be hard to know where to turn when you or a loved one has been diagnosed, so we hope you'll find some useful pointers in this blog. According to our information and support pages, there are many different types of brain tumour. They are often named after the cell they develop from or the part of the brain they start in. You can read more about the different kinds of brain tumours on Macmillan's information and support pages here. In the Community, we have several groups where you can find support if you or a loved one are diagnosed with a brain tumour. Our primary brain cancer group is for anyone affected by…

Steph - Online Community Team
Coping with anniversaries - Bereavement support

This photo was taken at 7:05 am on a Sunday while I was volunteering at Kielder for the running weekend. The grey bar across the middle is actually a fog bank drifting over Kielder water and there is one lone duck swimming from the shore to the jetty. – David Anniversaries can mean something different to everyone, it can be the birthday of a loved one, a wedding anniversary, or the anniversary of a diagnosis or of their passing. These significant dates can be difficult to cope with for many reasons. You may want to spend the day thinking about the person who has passed to celebrate their life or mark their passing in some way. You may find you would prefer not to mark the day at all, and instead choose to treat the day as any other. There is no right or wrong way to feel or react when an…

Former Member
Respecting everyone on the Online Community

Cancer can often seem to be linked to your gender. It can be easy to make assumptions that only women get womb cancer, or only men get prostate cancer. When chatting to others on the Online Community, sometimes it might feel easy to presume who someone is due to their or their loved one’s diagnosis. Anna, Macmillan’s LGBT+ Network Lead, is here to talk about why it’s important not to make assumptions when talking to others online, and how this can help our Community cancer forum to be a welcoming space for everyone. Within this blog, we are talking about gender and biological sex being different. Your biological sex is what people are assigned at birth, and gender is what people identify themselves as. For lots of people, this is the same. However, it’s not the same for everyone. We hope…

Eliza -Online Community Team
Planned maintenance - Wednesday 17th March, 6am - 9am

Hi everyone, Due to some planned maintenance, the Online Community will enter a read-only mode between 6:00am and 9:00am on Wednesday 17th March 2021. This means that you will not be able to log in, post or reply on the Online Community during this time. You will still be able to read posts and blogs on the site. If you feel you need some support while the Online Community is unavailable, please remember our Support Line is here for you. Our teams are available 8am-8pm, 7 days a week on freephone 0808 808 00 00 , or by email or webchat . Thank you for your patience and support as Macmillan continues to update and improve our online services. If you have any questions, please don’t hesitate to get in touch with us at community@macmillan.org.uk . Best wishes, Eliza, Ellen, Rachel…

Eliza -Online Community Team
Coping on Mother's Day - some support from the Community

This Sunday, it’s Mother’s Day in the UK, so in this Community News Blog we’re taking some time to celebrate and remember mums. We're also sending out a big virtual hug to anyone who finds the celebration a difficult time to get through. We know that Mother’s Day can be particularly tough for those who can't see their mum, or other loved ones, for many different reasons. The Community is here for you if you need emotional support. For those who have lost a child, lost their mum or have a difficult relationship with their mum, it can be a particularly emotional time. Certain days or events like these can often trigger lots of different emotions, no matter how much time has passed. Our thoughts go out this weekend to anyone grieving for their mums, or mother-figures. You can find support…

Steph - Online Community Team
Community in Bloom

We’re starting to see the first signs of spring and welcoming the brighter evenings. You may remember the ‘Winter picture festival’ that was featured on the Community cancer forum at the end of last year but because we received such great feedback from members that took part, and others who loved seeing the pictures posted, we have decided to launch our very own ‘Community in bloom’. This will be featured in our Express yourself group so please do join and get involved. This is a space for members to share springtime images of wildlife, gardens, seasonal foods and cooking, alongside anything which fits within the springtime theme. It’s a chance to show off your creativity if you enjoy crafts or have taken a picture which could brighten up the site. You’re invited to post as many images…

Megan- Online Community Team
Cancer & me 35 years on - International Women's day

Today marks international women’s day, a day where we celebrate the social, economic, cultural and political achievements of women. It is also a day to highlight women’s issues and rally for gender equality. Here at Macmillan we are dedicated to supporting anyone who has been affected by cancer and champion for better cancer support for all. Hearing and listening to the experiences of everyone is vital in doing this. In honour of International Women’s day, we are pleased to bring you a special edition of Willo’s blog series ‘Cancer & me 35 years on’. Willo, an artist who was diagnosed with Anal cancer in 1986 while living in Zambia, has been sharing her experience of life post diagnosis in her blog series with us. After reading today’s blog, in which Willo talks about finding confidence…

Former Member
Ovarian Cancer- Anne's Story

March is Ovarian Cancer Awareness Month so to recognise this, Anne who is known as KralC on the Community, has kindly shared her blog post ‘ Who… ? ’ to tell her story and spread further awareness of Ovarian Cancer. We would like to take the opportunity to thank Anne for sharing her personal experience with the wider Online Community and send our very best wishes to her with her ongoing treatment and tests. Who… ? Who would choose to write this down? Who would choose to read a story like this? Not me. Not in all the months since my ... diagnosis. No, not me. Isn’t the word - CANCER - in itself enough to stop any vague distant notion before the idea could even begin to formulate itself? In the past I have rushed by the broadcasts, the features, the interviews, the podcasts, the TV…

Megan- Online Community Team
Let’s talk about treatment: Prostate cancer and zoladex injections

In today’s Community News Blog, we’re kicking off Prostate cancer awareness month and our new “Let’s talk about treatment” series. This series will feature stories from members of the Online Community around what their treatment experience was like. Firstly, we have Roger, known as Pozthinker on the Online Community cancer forum . Roger was diagnosed with prostate cancer in 2011. They’re here to talk about zoladex injections and managing their long-term symptoms. Zoladex is a type of hormone therapy . It is also known as Goserelin. People might have it as a treatment for breast or prostate cancer. I was first diagnosed with prostate cancer in 2011, the year I was 66. (Yes, I'm 75 now.) I first opted for radiotherapy, but I was unable to hold my water. However, I was able to stay with the…

Eliza -Online Community Team
How reflexology helped me – Charlie’s story

In today’s Community News Blog, Charlie shares with us how reflexology has supported her throughout her cancer journey. Charlie was diagnosed with breast cancer and underwent surgery in January this year. She wanted to share with all of you how a few simple techniques have helped her with stress, sleep, bowel movements and swelling. She’s kindly put together some videos for us, to show us some simple self-help reflexology tips. Why not have a go and let Charlie know what you think in the comments section below? What is Reflexology? I wanted to share my story and cancer journey so far as I have been enormously helped by Reflexology and the benefits of reflexology seem to be quite unknown. As a Clinical Reflexologist I have been helped through my journey using a range of simple self-help…

Ellen - Macmillan

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