Community News - Macmillan Online Community

Music speaks – how music can help us get through difficult days

Community member and Macmillan volunteer Wee Me ’s husband was diagnosed with a Glioblastoma brain tumour in September 2020. You may know her from the “Carers only” group or “Glioblastoma multiforme brain tumour” group . Wee Me has shared lots of blogs here on the Community News. She has shared her experiences and support, from how to cope with hearing news to how to cope as a carer. Today, Wee Me is here to talk about something which is very important to her as a source of comfort and support – music. To quote Hans Christian Andersen, “where words fail, music speaks.” Music is all around us and to some it might just be background noise in a shop or “hold” music on a phone call, but it’s there whether you consciously recognise it or not. It touches us all and gets into your subconscious…

Eliza -Online Community Team
Life One Year Later- Jane’s story

Jane recently shared her ‘ Importance of pets during our cancer journey’ blog and is back as a guest blogger to share her reflections on her Endometrial cancer experiences one year later. She talks about some of the lasting effects from her chemotherapy and radiotherapy treatments and also about dealing with the fear of recurrence. Jane also talks about how she recognises the positive changes on her life and talks about her volunteering role as a Community Champion. I am just coming up to a year since my treatments ended, the cancer has gone but life has changed. I think that when the treatments end, there is time where you can begin to try to process it all. The endless trips to hospital have stopped and now it is just once every twelve weeks. You sort of almost forget it until the letter…

Megan- Online Community Team
Dealing with a teenager’s cancer diagnosis: Mandeep and Jai’s story

A cancer diagnosis can impact the whole family. As a father, Mandeep shares his experience of his son Jai’s cancer diagnosis in the hope of helping more families who are going through the same experience. Transcript Mandeep: I just remember looking at his face and I just saw him as a child. You could tell he was scared. It was as a parent, soul destroying. There’s never a nice day anyway to be told that you have cancer but, on your birthday, that is probably a birthday that we will never forget for the wrong reasons. If you look back at the photos from his 17 th birthday you can see it’s not Jai. He’s not his smiley self. He is a 17 year old lad, cutting his cake and at the same time, he’s got a real rough road ahead of him. They were saying that he will definitely loose his hair…

Megan- Online Community Team
“The biggest shock of my life." Stage 4 metastatic breast cancer to the bones: Karin’s story.

During her first routine mammogram in July 2019, Karin, aged 51, received the shocking news that she had stage 4 metastatic breast cancer to the bones. She lives happily in Stroud with her partner, 2 rescue dogs and foster pups. In this blog, she shares her story with us, giving us a window into her life, over 4 years after receiving the shocking news. Receiving the news That was the biggest shock of my life, being diagnosed with stage 4 breast cancer with mets to my bones from my first routine mammogram. “Treatable, not curable”, they said. Me, terminal cancer! Under Palliative Care. What!? Once I’d picked myself up from that one and started treatment, I’ve luckily had no avid disease (NAD) for 4 years. The COVID pandemic added to the cancer bubble mayhem, but I somehow navigated my way…

Dylan - Online Community Team
Life after cancer – getting the all-clear, recurrence anxiety, and moving on

The Macmillan Online Community plays host to a wide range of different discussion forums. As well as different forums for a whole range of cancer types, the Community also has spaces for a range of cancer experiences. One such space is our Life after cancer forum . It’s a common misconception that every person will have an exclusively positive reaction to being given the ‘all-clear.’ It’s tempting to think that getting this hoped-for news will be the moment all your stresses and worries instantly melt away forever. But is that true? Although feelings of relief are common, they can sometimes be short-lived, or at least far more complicated under the surface. “How do we do this? How do we manage to put one foot in front of the other and get out the door? Then meet people, who may…

Matthew - Online Community Team
“It has taken me over 5 years to come to terms with what I went through” -Dimple is sharing her story

Dimple shares her cancer diagnosis story and how telling her children about her cancer was the hardest thing she has ever done. Cancer and treatment can have an emotional and financial impact on your life and Dimple tells us about some of the challenges she faced when living with cancer. On the 29th of December 2015, I was diagnosed with Cancer or Cookies as I called it because the word still scared me so much. The term the doctor used when they told me I had Cancer was primary cancer unknown - in other words the cancer had spread, and they didn’t know where it had started. The doctor that told me didn’t even ask if I had someone with me or how I would be getting home. It felt like I was just on his list for that day and he delivered his news and carried on with his day. I managed to hear…

Megan- Online Community Team
Summer Picture Festival

What better way to look back on summer than through pictures? This summer, we asked Online Community members to share their experiences of summer through photographs and artwork as part of our Summer Picture Festival in our “Express yourself” forum . This forum is a place to celebrate creativity and how being creative can help you to feel better. Here on Community News, we’ll be reflecting on summer as we go into autumn by looking through a selection of members' photographs and artwork. Remember you can also see all the pictures from this year’s Summer Picture Festival in the “Express yourself” forum . Lots of members shared pictures of flowers in bloom. If you share a love of gardening, why not take a look at our blog on gardening chat ? Some members shared their paintings. If you…

Eliza -Online Community Team
Coffee, cake and catching up with the Community

Lots of us enjoy an occasional treat. Whatever you’re going through, it’s good to have something to look forward to. September is the month of the famous ‘ World’s Biggest Coffee Morning ’ where people all over the world get together whilst fundraising for Macmillan Cancer Support . In celebration of coffee mornings everywhere, in this Community News Blog we will be exploring the Community’s love of baking and getting together. What’s your favourite treat? Earlier in the year, Community member Mum started a baking thread, sharing a photo of their freshly baked chocolate mocha muffins. We thought they looked so delicious that we have used their image to accompany this blog. "I think a few people here like baking cakes and a few more perhaps like eating them and discussing…

Steph - Online Community Team
Living with Lymphoma- Yamour's shares her story with her mother Isaf.

Yamour and her mum, Isaf, talk in their Mother Tongue Turkish, about some of the issues and cultural stigmas they encountered when Yamour was diagnosed with stage 4 non-Hodgkin lymphoma when she was aged 21. . This video is part of Macmillan’s mother tongue project. (4 minutes and 49 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll to the end of this blog page. Transcript Yamour : In the early days after I got diagnosed with cancer my father would say, “No, daughter…

Megan- Online Community Team
"People are afraid to use the word cancer in our Community." - Nahida and Saddiya tell us more

Nahida & Saddiya speak in their Mother Tongue Sylheti, a dialect of Bengali, to talk about some of the cultural stigmas when faced with a cancer diagnosis. This video is part of Macmillan’s mother tongue project. (3 minutes and 54 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll see the 'Additional support information' section at the bottom of this page. Transcript Saddiya : People are afraid to use the word cancer in our Community. They immediately panic the moment…

Megan- Online Community Team
"I became a stage 4 lung cancer patient from an ordinary man overnight." - James shares his story

James and his wife Helen, talk in their Mother Tongue Cantonese to share some of the cultural stigmas and issues they faced when James was diagnosed with lung cancer. This video is part of Macmillan’s mother tongue project. (4 minutes and 38 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll to the end of this blog page. Transcript James: Before I was diagnosed with lung cancer, I had no idea that cancers can actually be treatable. From my own experience, I learned…

Megan- Online Community Team