Life after cancer – getting the all-clear, recurrence anxiety, and moving on

8 minute read time.
Life after cancer – getting the all-clear, recurrence anxiety, and moving on

The Macmillan Online Community plays host to a wide range of different discussion forums. As well as different forums for a whole range of cancer types, the Community also has spaces for a range of cancer experiences. One such space is our Life after cancer forum.

It’s a common misconception that every person will have an exclusively positive reaction to being given the ‘all-clear.’ It’s tempting to think that getting this hoped-for news will be the moment all your stresses and worries instantly melt away forever. But is that true? Although feelings of relief are common, they can sometimes be short-lived, or at least far more complicated under the surface.

It’s not that simple!

Family members, friends, and colleagues might make assumptions about how you’re supposed to feel. You’ve been told your cancer is no longer a serious threat. It’s either gone, or fully under control now. That’s job done, mission accomplished, right? You can get back to living your life right away, can’t you?

Unfortunately, it might not always be that simple. Cancer isn’t just about the physical illness or the way it can place limits on what you’re able to do while you have it. Having cancer can be a psychologically demanding, mentally challenging experience. 

Post-Traumatic Stress

While concluding your treatment can certainly change your outlook on life for the better, it can take a lot of work to process all the stress and worry you’ve been through. In short, cancer can be a traumatic experience which takes time to fade. It’s not unlike being left with Post Traumatic Stress Disorder (PTSD).

Letting it sink in

For many, receiving the ‘all-clear’ will be the first time in months or years where every moment hasn’t been consumed with treatment plans, appointments, meetings, and procedures. When treatment ends, it’s often when everything sinks in, and this change of pace really gives you time to think: 

 

One of our volunteer Community Champions describes this phenomena brilliantly: 

When does it end?

It’s no wonder that the most popular topic on the Life after cancer forum is how to move on once treatment is finished. How can we move past the trauma? How can we manage anxiety over cancer recurrence – the worry that cancer might return? 

The good news is that it is possible to move forward and to leave those negative feelings in the past. There are many Online Community members who are proof of that. The key thing to remember is that it’s perfectly natural to feel wary about ‘trusting’ your body again. Trust is something built over time, and so you shouldn’t put pressure on yourself to feel instantly relaxed.

If you’re worried, get it checked

While you wait for your feelings to adjust, remember that you still have a team of health care professionals looking out for you. Alongside your scheduled follow-up appointments, you can get any additional concerns addressed by getting in touch with your hospital care team or GP. It is their job to look after your health, and they will be more than happy to put your mind at ease by discussing your concerns.

  

Emotional wellbeing services

On top of the clinical support available, you can also take advantage of a whole host of emotional wellbeing and mental health services that can help you to unpack what you’ve been through, and can help you to formulate strategies for moving forward:

  • Macmillan Support Line – For emotional support and practical advice, our Information and Support team is here for you. They’re available 7 days a week, from 8am to 8pm on freephone 0808 808 00 00, by email or live webchat.

  • Free Bupa counselling – Macmillan have partnered with Bupa to offer up to 4 free one-to-one counselling sessions for people living with a cancer diagnosis.

  • Support Groups In Your Area – Macmillan’s handy website where you can search for support groups and other services that are local to you.

  • Macmillan Buddies – Macmillan’s free service where we match you with someone who understands what you're going through, and they'll give you a weekly telephone call, video call, or visit in your home.

Further reading

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