Diagnosed today

Hi I have Bein threw it 6 weeks post op first of all I hope your ok it’s a huge shock.did they give u a grade and stage? How old are ? Xxx

Yes they did it’s grade 3 and I’m 65. It’s so scary

What grade was yours and what age are you? How you feeling now? Did you have keyhole?

Hi hope you are ok I am 31 I was grade 2 stage 1a am feeling better now still scared when I think about what happend and keyhole I was scared of surgey but not as bad as I thought! Have they gave you a stage yet? I hope your ok try and stay off google hard Ino but Dosent help xx

Mine is grade 3 I’m so worried and it’s not sinking in at all

What are the next steps they have told u is going to happen xx

Having a ct scan next week and a hysterectomy in the next few weeks, I’m so scared and my daughter isn’t dealing with it good at all

Aww am sorry to hear that it’s such a shock but once u have a plan of the MDT meeting u might feel a bit Calmer 

Hi Annie 321 - I’m so sorry to hear about your new diagnosis. It’s such a difficult and scary time. I’m 64 and I was diagnosed back in November and it threw me into a total panic. I was imagining so many symptoms, and had so much catastrophe thinking. I completed all the tests - scan, hysteroscopy, MRI, chest X-ray - and then they had the MDT meeting where they come up with a plan. I’m to have a keyhole hysterectomy plus taking out some lymph nodes. That’s because the tumour is quite advanced through the wall of the uterus apparently. Have you got the plan from your MDT meeting? That’s the Multi Disciplinary Team if you’re not familiar with the terms. I only got a brief phone call after the meeting and didn’t understand everything they said. They didn’t send me anything on paper from the meeting, which didn’t help. About 10 days later I phoned my GP and she talked me through it quite thoroughly, so that was helpful. And I also call my specialist nurses now and then. Do you have one? It’s their job to help you at every stage, so don’t be afraid to call. I have sobbed down the phone quite a few times and they have been very understanding. I also call a nurse at our local cancer charity. It just helps me a lot to talk to someone who understands. This waiting for surgery is really hard isn’t it. I don’t have a date yet. I get so scared that it is getting worse while I wait, even though everyone tells me that’s not true. Do you have a date yet? It is extra hard to be diagnosed at this time isn’t it, when the pandemic is complicating everything. I’ve had some dark moments about that too. I’ve learned, from other lovely ladies on here, to keep myself busy and distracted as much as possible - housework, jigsaws, baking, Zoom classes, anything to take my mind off things.  You’ve come to the right place here. I’ve had some really helpful replies from women who know what we’re going through. Keep posting. Keep asking questions. Keep breathing. Sending you a big hug dear Annie xx

Hello Annie321

We all understand your anxiety and feelings. We've all been there. I found the Macmillan booklet Understanding Womb (Endometrial) cancer invaluable as well as the support of all the ladies on this forum. It was given to me by my CNS when I met the consultant.

You can download the booklet here  https://www.macmillan.org.uk/information-and-support/womb-endometrial-cancer/understanding-cancer/about-womb-cancer.html

Once you've got more questions, come back and ask, one of us normally has an answer.

Sending you big hugs, Barb xx