Hi everyone, I currently am waiting for my operation to remove VIN3 pre- cancer cells. My operation was put back , as it was 12th may at first, but they cancelled it . Anyway I know have a new date , 3rd June, but I am expecting some strange feeling...
Hi everyone! Newbie here, just joined after an appt with a nurse practitioner at my GP practice yesterday for what I thought was persistent Thrush! I was 60 last September and for the last 4 weeks have been experiencing intense itching, burning (although...
New here. Just awaiting WLE next month. Totally terrified. At work now, but going to catch up with all the posts on this "rare" condition later. Seems so little available support or understanding out there, aside from others with condition. Happy...
Hi, has anyone had some or all lymph nodes removed. What was the outcome. I'm 9 weeks post surgery, got problems, waiting for a referral to the lymphadema clinic.
Hello ladies, Firstly I am hoping joining here is unnecessary but I am in a state. Have had itching for around 6 weeks thought maybe soap or washing liquid so changed both. Tried washing with just water, nothing helps I wake up at night scratching....
Hi. Has anyone who has had a full vulvectomy had that area stitched together, so you just have the opening of the vagina. Also has anyone had the urethra moved. Thanks
Hi everyone, I'm new to the group, just received my results today. My biopsy has been sent to Preston for further diagnosis and to have a treatment plan. I'm so scared
Hello everyone, I am 64 and was diagnosed with EMPD of the Vulva in October 2024 and had my first surgery in January this year. I was interested to read that many EMPD patients have been treated with Immiquod and similar rather than surgery. Im a Brit...
Hello after 2 years of extensive itching and being treated for lichen sclerosis. Dec 2025 I was biopsies and diagnosed with vulvar cancer. Feb 28 I had the vulvectomy surgery and lymph node dissection. Healing now and waiting on results.
Good morning, I have been on my VIN journey for 4yrs, had WLE for VIN 3, regular checkups bopped between VIn 1 and clear. Have also had Dermovate cream treatment, However Last Wednesday had further biopsies under a general and found out yesterday I...
