Hello everyone,
I am 64 and was diagnosed with EMPD of the Vulva in October 2024 and had my first surgery in January this year. I was interested to read that many EMPD patients have been treated with Immiquod and similar rather than surgery. Im a Brit, but I live in Portugal and want to make sure I am on the right path in terms of staying on top of this disease and would love to know who is your first point of contact ie, who monitors your progress, is it your GP, or a dermatologist, gynaecologist or an oncologist? Have you been referred to a teaching/ university hospital or do you attend your local hospital? There is so little information here and all the medical professionals say they have only seen it in books.
Thank you so much for reading this.
