Hello, I'm new. So new, that I don't have a firm diagnosis yet. I had a referral to gynae clinic about a wart-like growth I'd had for a while and both gp and I had written it off as a skin tag or wart. Fast forward about 4 years and it started feeling...
Hi. Just a quick hello. I found out yesterday I have Vulvar Cancer. Just my bloody luck to get one that’s super rare, and I’m only 45. Not sure of what’s to come, but I’m not relishing the fact that I’ll have to have surgery down there, but such is life...
Has anyone with Vulvar Cancer received immunotherapy(Keytruda) after chemo did not work and maxed out on radiation therapy. Did you get tested for PDL-1? If so, what was you test score? Thank you, Dream
Hello, I was diagnosed with VIN3 & HPV in 2017. I had a wide local excision and since then have gone back to the hospital every 6 months to be checked over. The last visit was in June this year. I have the worst itching in my vulva and around my anus...
Hello I am aged 80, fit and active - swim, walk and travel regularly. I was diagnosed with EMPD on 1 July following a biopsy. Due to see the gynae/oncologist on 01 September. Options for consideration given at time of diagnosis - surgery, course of...
Hello. I just got diagnosed with VIN3 and had surgery a week ago. i had a wide local incision of left labia and down to perineum. It is awful. My margins are positive. What have others done next? I am 48 years old and have already gone through menopause...
Hi xx i was diagnosed with stage 3c vulvar cancer in February , I’ve had surgery in April aswell as having all my lymph nodes from my ground removed as the cancer has spread! Now on fay 18 of 25 radiotherapy sessions and feeling tired and sore! I...
Hi, I had surgery for vulva cancer 7 years ago! Very scary but had put it behind me as surgeon said he expected it to be a one off! Fast forward 7 years and I had it reoccurring so yet another wide local incision and sentinel lymph nodes removed, follow...
Hi, I am new to this community (my 1st on-line community) I am looking to connect w/other females who have experienced a radical vulvectomy Although it has been >90 days I am still devastated from the loss
Hi, I was diagnosed with Vulval cancer last week, had an immediate CT scan but have to wait until next week for an MRI. I am in total limbo and do not know how I am supposed to be feeling x
