Lichen sclerosus & loss of labia/clitoris

• Lemoncake, so sorry you are dealing with this. Yes one of the  worst parts of my 10 year battle with vulva cancer was when I had to lose my clitoris. My oncologist kept it as long as she could. Now I have no urethra either and again she kept it as long as possible but the tumor had already gotten to my bladder and had to have half of that out too. Stay vigilant. Believe it or not I still had like three orgasms without my clitoris!!! I balled out loud the first time.

Oh Lemoncake I am so sorry that you are going through this 

It's easy to say keep positive but it's not so easy to do 

I had been diagnosed with Lichen Sclerosis & was just given benovate cream to use as when never told or asked about having follow up appointment my DH was so angry about that when I got diagnosed with cancer 

I have said if I waste time being angry I not having time to get a grip on the it I was & still am positive about it all even now that I got an abscess near the groin wound & after being in hospital for 6 days & now have to see the nurse every day 

I can only say ask questions especially as to where it has spread & chances of it being or going elsewhere as they try to do the minimum but in some cases have to go back & do more so find out & if necessary say to the consultant can you have time to consider the options you may have been given

I will keep you in my prayers do let me know how you are getting on 

Best Wishes xx 

Sometimes, I wish there was a 'sad' button to press as well as like, it does not seem right to press 'like' when someone is going through hell, but still managing to stay positive.

I am amazed at all the brave people on this site, 

Take care.

Aprilsue x

Dear Lemon cake

I am coming up to 2 years on 24 8 16. since total vulvectomy and by lateral lymph removal.  There is only one way to put this, it's going to be a long road but am now walking short distances.go to the pub every two weeks. hoping to go abroad in September. little advice, get a second opinion if in doubt. a consultant recently told me we all have options, as the consultant who did the op didn't have the experience to do it.

I wish you strength courage  prayers  and laughter.

love m

.

I'm very much missing this too but hopefully will learn other ways to orgasm . U r all so brave and positive x