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I’ve had a biopsy & been advised it’s a CUP as my symptom is a swollen shoulder. Nothing else is showing anywhere on the various scans but now I’m really worried where or what the primary could be. What tests did you have? How long have you waited for...
Hi there, I've recently been told from the results of a biopsy that I have a secondary, had PETct scan this week so still waiting results of that! It's the waiting, wondering & uncertainty that is getting to me....... I'm not alone on this unknown journey...
Hello everyone I joined in the hope of any advice on behalf of my mum who is 80. last year in October mum was unwell and tested positive for Covid, she had the cough etc. she got quite unwell and went to hospital where they did various tests and chest...
My big brother got his results today from the MRI and CT scan done before Christmas, Unknown Primary, as suspected. No further forward with treatment plan and have to see cancer specialist, Oncologist and Pathologist next week after they have a meeting...
Hi everyone, I am so pleased to have found this group. My husband was diagnosed with CUP in August this year. He thought he had pulled a muscle gardening and didn't contact the GP for 6 weeks in case the pain in his back abated. We went on holiday in...
I've just been diagnosed with secondary liver cancer but the doctors do not know where the primary cancer is. Hoping to learn more about the subject and to join in conversations were I can.
Hello - wow this is never a place I thought I'd be. I've been very unwell for two months thinking it was coil related turns out this had just got an infection. Never did I imagine I'd walk out of A&E with a cancer diagnosis that's spread with unknown...
I had to make the really tough decision of knowing how long my oncologist thinks I have… I found out this news today and it’s completely shocked me. Such a hard thing to hear for me and my mum who was present at my appointment. I don’t want to discuss...
Hi. Got told weeks ago that I have secondary liver cancer. Further tests were done to locate the primary last one was yesterday which was PET scan. This didn't show up any primary cancer. I have appointment with unknown primary cancer oncologist next...
Hi, I was diagnosed with an incurable cancer 21 months ago. Have had 2 rounds of chemotherapy and I’m currently stable in my diagnosis. I have many friends and family around me but yet feel so alone. I feel like I’m trapped in a bubble… others can come...
