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Hi all, I had a TT in Nov 2019 for papillary thyroid cancer. No RAI. since then my TSH has always been well suppressed and Thyroglobulin has always been undetectable <0.1. bloods a couple of weeks ago show TSH of 46 and thyroglobulin of 6. Antibodies...
Hi everyone I was discharged after 9 years of being monitored with stage 3 papillary cancer in April. I had one last blood test. I have been called today to be told I need a neck scan because my thyroglobulin is raised and at 13. I am so upset and worried...
Hi, just looking for some advice. I had a hemithyroidectomy in November and have now been diagnosed with papillary thyroid carcinoma with foci suspicious for angioinvasion. It has been recommended by my consultant and multi disciplinary team that I now...
Hi, first time posting. Had partial thyroid removed 1st October, results came back cancer, had second op to remove the other half on 29th October. I have an appointment with consultant next month to discuss RDI. First op damaged one side of vocal chords...
Hello all!! My 22 year old daughter diagnosed 5 months ago with classic PTC. No angio invasion. Had a hemi and removed left lobe and isthmus. Clear margins but noted on pathology that she had lymphatic invasion present. No angio invasion. Thought for...
Hi, not sure how I got here but as it’s near the end of the year I’m struggling with my emotions and feel like it’s all catching up with me. My journey so far, found a lump in my neck, followed by an ultrasound, with a FNA, intermittent biopsy result...
Hi just joined the group I’m 7 years into medullary cancer just started selpercatinib I’m desperately trying to find others in the uk on the same meds to here there stories with it if anyone can help or knows of anyone who is on it or starting please...
Hello, I was diagnosed August 2025 with papillary thyroid cancer, having 4 years prior and over a few years being told it was a U2 (no further action required) I'm struggling with the diagnosis. Not necessarily the cancer itself but the fact it was...
In Febuary this year a massive lump appeared overnight, and after alot of tests they said do I want it out as they weren't 100% sure it was ok and I said yes as had a bad feeling. Had the operation 17th April, half my thyroid out with the massive lump...
I started Selpercatinib 160mg twice a day on Monday. I haven’t noticed any symptoms but I’m not sure if it’s too soon. is anyone else on this? how are you feeling? thankyou
