Hello

Hi

I am new to the group and thankful to be able to find a support group discussing the difficulties of living without a thyroid and thyroid cancer. 

I am 57 years old and live in France. I was first diagnosed with thyroid cancer in 2019, I had TT plus removal of 14 lymph nodes 4 of which were cancerous in the September , in November I had RAI.

2020 was a year of learning how to deal with the changes going on with my body, most of it by my own research and support groups. It seems Endos the world over don’t tell us or help with the symptoms we have to battle through.

November 2020 after Thyrogen injections and a PET scan they found one definite cancerous lymph nodes and a few other suspicious, so had a neck dissection January 2021.

This week I am  having Thyrogen injections again.

yesterdays injection was fine, this mornings one was so painful and I am now feeling palpitations in the back of my throat and chest .Last year the injections were fine but I did have hypothyroid symptoms the week after.

Friday I am having a breast biopsy , there is something in my breast but doctors do think it is benign but want to be 100% with biopsy. No connection to thyroid.

That is my story . I would like to add that I’m fed up of the attitude of thyroid being the good cancer , I know this has been said many many times but it doesn’t seem to teach people, I know it has a very high survival rate but it’s a ‘pain in the neck’ learning to live without a thyroid .

wishing you all love and strength through your thyroid journeys x

  • Hi  and a warm welcome/bienvenue to the Macmillan Online Community but sorry that you needed to find us and to hear about your diagnosis.

    Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster ride.

    The Community is organised into dedicated support groups so can I see you have joined our supportive Thyroid cancer group, this will be a good place to connect with others navigating the same type of cancer journey. I'm sure someone will be along to reply soon.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. Just copy and paste this, your first post. You can amend it at any time. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Sending you welcoming hugs Bx

    I'm a community champion

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi  and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your diagnosis.

    Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.

    The Community is organised into dedicated support groups so can I see you have joined our supportive     group, this will be a good place to connect with others navigating the (support of a family member on the) same type of cancer journey.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Sending you welcoming hugs Bx

    I'm a community champion

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett