Hi
I feel a bit silly posting on here because I have not had any diagnosis of cancer up to yet.
I had a neck scan for a cyst at the back of my head and neck pain and do have a little trouble swallowing but nothing major. They found a thyroid nodule by incident.
it's 11mm x 12 mm
It's classed as a u3 apparently and is solid with more of a blood flow than they would like to see.
Anyway I was sent for a fna biopsy and my results are thy1 indertminate. I was sent then urgent to ent and yesterday I was told that they want to do another fna next week and then go back to ent the week after.
I asked if it comes back the same what next and he says surgery to remove half the lobe.
I don't really want surgery naturally and asked what percent turn out to be cancerous. He said 20% chance which is 80% chance of not.
My thyroid tsh test is normal.
Has anyone with a u3 nodule been in this boat and does anyone know if the nhs do the afirma test yet? I've had extensive surgery a few years ago for a cholesteatoma which had grown everywhere and although not cancer it had done a lot of damage.
Is it definitely true that with half the lobe you don't need any medication? My function test is fine atm.
Thanks to any replies and I realise I have not been diagnosed and 20% chance is low.
Hi jessy
They give nodules a "u" rating just from the ultrasound result between u1 to u5. Ui and u2 are good and u3 and above needs biopsies.
After the biopsy they give a thy rating again between thy1 ( being non diagnostic) and thy2 benign and then thy3 indeterminate or suspicious and thy4 and thy5 I think most likely cancer.
I just asked for mine and had no idea what they actually meant until I looked them up. My gp gave me mine too. It was then explained (although I did have some idea) by the consultant.
If you ask for the u and thy rating I am sure they would tell you.
Xx
Hi all just joining group, have U3/thy2 benign nodule, quite small.. hope to hear from others, support/ chat/ encourage...
Hello and welcome
So where does this leave you now with your nodule? I can guess - and it is only a guess - you're on a 'come back in a year and we'll have another look' regime. It sounds like the doctors are confident that you don't have cancer, so what happens next?
We're always happy to help and everybody is welcome here - we even have people who've joined whilst waiting for diagnostic surgery who were found to not have cancer and still pop back occasionally to ask about medication. However, if you've got a confirmed diagnosis that it's benign, I'm not sure whether hanging out on a cancer forum might be rather upsetting and worrying for you. Surely it's better not to know TOO much about the bullet that you just dodged.
In your shoes, I'd probably be looking for a more general 'thyroid problems' forum (there are LOTS of those out there, for sure) instead of a thyroid cancer group, but as I said already, you're more than welcome to join us but please take some time to think about why you want to know more and make sure you can handle what you might find here.
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
Hi caz,
I understand your concern because I think they still need 2 thy2 results to be sure don't they. From what I read when I was wondering about mine. I assume they will repeat in about 6 month's. That's what guidelines say for this although I also realise they are only guidelines.
Good luck
Hi thyroidnodulehelp.
Thank you for the info. I have started a new thread because I thought this one was getting a bit long.
I still haven't a clue what my thy rating is but I'm sure I will find out Tuesdasy.xc
Thank you; I was a bit confused as initially I was sent a letter saying I had thyroid cancer but they were not going to take any action, just scan every 6 months; then told to discard this letter and that i just had thyroiditis (which was what the doc said when i went for ultrasound and biopsy); then after they had discussed biopsy i was told benign etc.. so kind of been a rollercoaster last few weeks. Not wanting to say to peeps I'm ok, and then they feel bad.. but just to share the whole enormity of hearing a diagnosis of cancer and how it turned my life upside down.. but supported by prayer from many people in church, and friends at work (Muslim and Christian); I'll pray for anyone out there who would appreciate it. As you say am on a wait and see ... (have appt in 2 months), so will maybe just dip in and out of this group, but so glad to know of this support for whenever I or friends/ family need it!
Thanks! Had 2 biopsies last year but think first was inconclusive (at one hospital) so sent to another, I thought about a different problem as I'd mentioned too much saliva, but was given US and FNA. The radiographer kindly checked my slaivary glands as that was what i was bothered about and found a lump under my ear. This was removed and found to be adenoma. Quite numb skin even now about a year later, but no damage to facial nerve (praise God!). Not sure what results of US a year ago was so will check on that at next appointment. Bless you.
Hope all are coping and just to update
Well I've now had my 6 month scan and there wasn't another biopsy. The nodule is still the same or nearly the same so obviously not that bad. She did show me how close it was to my carotid artery and was saying that she doesn't do core biopsies but did say that it's risky because of that artery.
I have no idea what next but just today I have rang my consultants secretary and asked what next and she said the scan results are back and that my consultant will be in touch if I need to see him. Then she said he would get in touch next week so not long to wait. I asked if my results were still the same ultrasound 3 result and she said she wasn't medically trained to give my results. I just hope it's watch and wait and no op. The radiologist did say they are slow growing anyway when my husband said about it not getting any bigger. I think it will be OK this time and maybe another scan in 12 months or so. I really don't think it's anything.
Hi That's helpful advice! don't always know in advance if they are going to take a biopsy or just scan though x
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