I started Selpercatinib 160mg twice a day on Monday. I haven’t noticed any symptoms but I’m not sure if it’s too soon. is anyone else on this? how are you feeling? thankyou
Hello. I was told last week the pathology from my partial thyroidectomy has come back as tall cell varient and they want to remove the other side of my thyroid next month with my lymph nodes. I have researched and know it can be more aggressive and...
Hi I was diagnosed with medullary cancer 7 years ago it spread to the bones a couple of years ago I’m now on selpacatinib is there anyone on here that started the same treatment
Hello I saw consultant and I am scared what will be next with my life....I am 45 and I was so excited to go back to uni and work only part time. I found out that I have two nodules :one is U3 and second one is U4 so consultant advised me to have surgery...
Hi everyone, Just wondering if anyone has had a similar experience. I get scans and bloods every 6 months to monitor the thyroid cancer mass that was unable to be removed. My most recent results show stable bloods and the only mass is also stable...
Hi lovely people I am confused because I have pain little byt in my thyroid nodul.I dont know if it is inflammed maybe little byt. I am before period so this could be the reason?My surgery is 6 th of January. I can feel sometimes my nodule and I cant...
Hi. I had a diagnostic partial thyroid removal on the 9th November 2025 i receivers my appointment letter today ( 27thNov) my appointment isn’t for another 3 weeks, so I’m guessing if they know the results and can wait 3,weeks that they are fine?...
Three weeks ago I had a partial thyroid removal operation which I was told had gone well. Yesterday I was told cancer was present in the removed thyroid and i will need to have the other side removed as well as Iodine treatment three months later. I am...
Hi Could i have help please.... so I had scan of my thyroid gland after that I had biopsy, which the result came today on mine nhs app.It says abnormal but it doesnt say cancer.Also why is says no further action? I am so stressed, please help
Hi. Does anyone have any experience with the side-effects of Cabozantinib? I've been put on Cometriq to treat metastatic medullary thyroid cancer and originally I was prescribed 140mg per day but the side effects were too severe. I had a sore mouth...
