I am scared

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Hello

I saw consultant and I am scared what will be next with my life....I am 45 and I was so excited to go back to uni and work only part time. I found out that I have two nodules :one is U3 and second one is U4 so consultant advised me to have surgery.They are going remove all thyroid. I do worry about surgery and complications, weight gain after being on hormonal therapy, tiredness, depression and unknown. Life is shit.I had an eating disorder for long time and now it is this. I hope I am going to live ...I know that some people have worse.I am sorry for moaning.

  • Hi, I’m sorry you are having to deal with this.   All I can say is my experience.  I had a diagnosis in early 2022 and had my thyroid removed and some neck lymph nodes  as the cancer had travelled.  It was my first surgery and I was scared but I recovered well and felt well supported by the hospital team. 
    I then had a couple of radioactive iodine sessions,  in May 2022 and January 2023 - my cancer is an aggressive type. 
    I have found the levothyroxine tablets fine, no weight gain - actually the opposite I suspect.   I have been ok emotionally.  My husband already had a diagnosis of bowel cancer and in fact died a year ago this week. 
    I will have a scan arranged in February or March and to be honest I manage not to worry about it too much.  
    it’s a complete pain but I am determined to get on with life.  
    I wish you lots of luck ! 



  • It is a scary time indeed but the surgery itself isn't too bad, just need rest up after and avoid straining your neck. I've had weight gain but I've been managing to lose lately using a calorie controlled diet and walking more etc so it's not too bad now. I have a few things going on like heat intolerance and sweating, hair loss but my palpitations have pretty much gone, and I am still being suppressed to stop the growth so my dose is a little higher than it would generally be due to my follicular variant of papillary thyroid cancer with a positive margin.

    If you ever need to chat or vent come here, we have all mostly been where you are right now so we understand how your feeling. The unknown is a scary place but together we can hopefully ease some of your worries, all the best x

  • Thank you so much for your messageBlush

    I am so so sorry what you went through and you  are still going...I  feel deeply how much you are suffering now...you are still very brave and inspirational Heart️Thank you Pray

    what cancer did you have? I thought that thyroid cancer dont spread..and I didnt know that it can come back

  • Thank you for your supportive messageHeart

    Your story it is very inspirational too. 
    I guess everyone have different experience with hormonal therapy. 
    Have you had any symptoms before diagnosis?I said doctor that I am sweating but he said if my thyroid blood test it is ok that it is probably perimenopouse.

  • It's totally natural and normal to feel frightened and apprehensive about what comes next. It's a difficult thing to face and you've had a shock. Try to take things gently, step by step. 

    If you look back over previous threads here you'll see a lot of helpful and reassuring advice about coping with the thyroid operation and recovery and please do feel free to keep posting and asking questions, this is a very supportive and kind forum.

    I was diagnosed with a large follicular thyroid tumour in 2023. I haven't had any weight gain but have had some issues with fatigue that I attribute to being on a high dose of Levothyroxine since my thyroid completion operation. I hope that when I can reduce the Levo dose a little next year that the fatigue will improve. 

  • Well like any cancer thyroid cancer can spread or recur.   But in people of your age it is likely to be ok.  
    I’m 64 now and my variant, tall cell, is rare and more aggressive and tends to occur in older people.  
    To be honest I have come to the conclusion that all we can do is get on with it.  Be grateful for what we have and do as the medics tell us. 
     Xxxx

  • I had very bad palpitations but they put me on Propranolol and it worked, I've just taken myself of them gradually and good so far, I was very fatigued and tbh I still get very tired now but my iron, folate and b12 are all having a issue and are low or keep dropping low so could be combination of things. My bloods are always too high or too low never right haha