2019 - had right testicle out - pure Seminoma - no spread. No treatment required
last two months - small 8mm lesion on remaining, had tests - ultra, MRI, although specialists are not 100 percent it’s testicular cancer, the appearances show that it is. Consultant has suggested a partial orchiectomy. Which will most prob happen within the next month.
Thing is - I have some doubts
1. They are not totally 100 percent it’s TC
2. The lesion has not grown and stayed at 8mm for approx 3 months now
3. I asked my consultant isn’t there more of a chance that If you have a PO the TC can come back (if it turns out it is of course) - the answer was no because the lesion is on the upper pole of the testicle and not in the centre
they have had 4 mdt meetings about me, results sent of too barts etc - at the end of the day, I trust the NhS and the specialists, but i have a gut feeling about this, and I’m scared to say no because I might be wrong. The fact that my consultant had to search for a surgeon who could actually perform a PO set me back to be honest.
I would really appreciate anyone’s advice who may have gone through something similar etc - or just someone’s opinion on this.
would just like to add there was also a small 2mm lesion on the bottom - which was picked up the same time as the 8mm, however when I had my last ultra sound (month apart) the 2mm lesion had disappeared! I may be clutching on strings but shouldn’t that be considered ? That perhaps the 8mm is in fact benign and could also have the potential to disappear.. there is no spread since the lesion was found. And as mentioned above the size has remained the same
thanks
Hi and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your diagnosis.
Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I see you have joined our supportive Testicular cancer group, this will be a good place to connect with others navigating the same type of cancer journey.
When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
Sending you welcoming hugs Bx
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