Testosterone treatment

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Hi all 

I have had testicular cancer, I’m in Surveillance. 

hope not to add a negative to the forum but I’m notice I have low mood a lot, sex drive isn’t there bad fatigue. Anxiety through the roof. 

obviously I would never risk TRT but when k google symptoms it all points to low test. Where as now I am at 11 which is low but acceptable on NHS. 

im guessing when your used to being in a physical job having all these things in life. I just feel not myself but I can’t seem to get any help. Anyway if anyone can help please let me know. Thanks in advance 

  • Hi..

    Not sure if i can actually help but can offer you where I am… I am about two years post op and chemo, so in surveillance too.    After the initial recovery I felt and do still think I feel a bit different.   I didn’t have any baseline blood test before treatment as the surgeon said the tumour would alter the results anyway..  So I don’t know what my T was before treatment..

    I had a test at the gp about a year after treatment and as I recall I was about 14 T.   As you know the nhs low end is really low so I was deemed ok….  I know there are other markers that go along with the basic T value but can’t say I understand them!   My concern was what if I was say 3 points higher before treatment- I am bound to feel different….

    With not knowing what your T was before cancer it’s difficult to pin down.   I think I fatigue more easily, I did/do exercise a fair bit and feel now i am not as strong but it’s subjective….   I can have periods of low mood too but it’s not all the time.

       For balance I am an oldie, late 50’’s so have the standard age related stuff going on too which makes it more difficult to,pin down.

    i think I am lower than I was pre cancer but have no way of knowing.  I am also aware that having cancer messes with your head a fair bit and maybe it’s easy to point at the treatment when it could be something else.

    i did consider asking for a referral to an endocrinologist to try and get a better answer but in the end I parked it and have just been getting on with stuff as I am.

    I know the medics all say your body compensates and you can manage fine with only one nut but the nhs ranges are so wide I think “we” could be lower than we were before treatment and feel different but clinically we are classed as ok!

    I can’t deny I had considered talking to one of the private clinics but was wary of this having had cancer and not wanting to add a synthetic T into me if that might be risky with my history.   I haven’t asked my Onc about this, probably as they are all so busy and it’s seems a bit wrong when I mostly ok..

    Sorry it’s a bit of a ramble but it may give you a view into someone else who has been on the journey.

    good luck

    TC