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Hi. I was diagnosed with Peripheral T cell NHL at Christmas. I have been in a state of shock, denial and avoidance. I am now trying to come to terms and hope this group might be able to answer some questions and share some experiences.
My child has T cell lymphoma, diagnosis around 8 weeks ago, I am a senior sister in PICU. I don’t feel I want support from parents in the usual way, I want to be back at work at some point so professional boundaries are a worry for me. what groups could...
I have the above cancer and been having Pola-br chemotherapy. I have had nausea symptoms throughout which has wiped out my appetite and I have lost weight. Does anyone have a way of counteracting this nausea feeling? I can cope with most of the other...
As 58 year old male I was given the news that my lymphoma is AITL seem like it’s quite rare I start chemotherapy tomorrow the CHOP there going to harvest some stem cells at some point on treatment any pointers on anything that helps get through the chemotherapy...
Hello my symptoms started in march 23 last year. I had a rash from my neck down to my ankles. It was very itchy. My legs swelled and I had high temperature with night sweats. My hair was falling out on my hair brush. My GP didn't know what was wrong....
I been recently diagnosed with the above. I have planned 6 cycles of BVCHP chemotherapy. I had 5 with one to go. It's been a tough few months, processing the diagnosis, and as an aggressive type of cancer, treatment starting within a week. Just...
Hi all, (apologies - long post) I have a 25 yr old son with a recent MF diagnosis. he has had severe atopic eczema(80-90% surface) all his life ( since birth) and has been prescribed with betnovate, various steroids etc. Bad flare ups caused him to...
Hi all, My 11yo was diagnosed with T-Cell Lymphoblastic Lymphoma at the start of February. He's struggled on and off with treatment and infections but mostly with sickness and loss of appetite. He wakes up feeling sick every day and it's a fight to...
Hello. My partner was diagnosed with NH HG T CELL three weeks ago and yesterday the oncologist confirmed it to be Angioimmunoblastic TCell type. After reading so much info it seems to be a rare one. If we weren't absolutely devastated and terrified...
Hi all- I'm just wondering if anybody has a recommendation for a good lotion for CTCL. I have recently finished a course of topical steroid use and have noticed a change in my skin/ how it reacts to creams. It is less raised/ red but is drier. I used...
