People of any background, gender identity or sexual orientation etc can be diagnosed with cancer. Please be welcoming and supportive when talking to others.
We keep this a safe space for everyone. To find out more, take a look at our Community Guidelines.
In 2018 I was diagnosed with Psoriasis. After a number of trials on steroid drugs I moved on to biologics, Tremfya, Skyrizi & Taltz. During this time, nothing was able to clear the scaling on my hands & feet. In the spring of 2022, my white blood count...
Hello all, Lovely to see so many friendly messages here. Hoping I can find a bit of community with those who have also been affected by this. I have recently been diagnosed with stage 1b CTCL (Mycosis Fungoides) and am about to start UVB therapy....
Hi all, My husband has Mycosis Fungoides and has had for a number of years. He has a particularly large patch on his leg which is seeping. It is being treated using a chemo cream and we are trying to leave it as open as possible to the air, but he does...
Hi! I've just joined and I don't actually know where to turn to. I have just got home from an appointment with the consultant for my dad. He has been diagnosed with stage 4a angioimmunoblastic t-cell lymphoma (I apologise if the spelling is off) ...
Hello,my husband has just been diagnosed with T cell lymphoma,after a large abscess 10inches was removed from his small intestine.he has an appointment next Thursday to see the specialist.I am worried s ck ,I don't know what to do,or what's involved ...
My partner has all the signs and symptoms of T Cell Lymphoma and the doctors believed it to be a form of skin cancer with the rashes however now due to the bloods coming back abnormal and a large decrease in his white bloods cells he is now under investigation...
Hi all, My 33 year old son has just been diagnosed with Cutaneous T-cell Lymphoma. Reading about it, his is a fairly typical story, he has had eczema/psoriasis since age 15 although it didn’t quite fit the diagnosis. He had extensive skin testing about...
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hello Everyone, I have recently been diagnosed with this although i was waiting for a diagnosis for over 6 months due to it being so rare and a biopsy that i had having to go to different university hospitals around the country. I have also been told...
