Hi all ... I'm new to the group and was diagnosed with low grade ESS in July 2020. Is there anyone in the group with the same diagnosis ? I find that being diagnosed with such a rare disease can be very lonely x
Hi Claudey
Welcome to our community, though always a bit sorry to see new members. My wife has Leiomyosarcoma rather than ESS but can definitely relate to the issues around rare cancers - indeed when my wife was first diagnosed I was not even sure it was cancer at all.
I did a search on the site and it came up with this - it might be worth looking at the recent post in our womb group. Chellesimo still seems very active on the site too.
<<hugs>>
Steve
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