I have been experience pain and tenderness in the back of my thigh for about 4 years which gradually has gotten worse. I have been seeing the osteopath for adjustments and had an appoint with MSK but they all thought it was muscle. Recently started...
Hi, I’m just messaging for a bit of advice, my husband is currently at home awaiting an appointment for a biopsy then we have up to 5 weeks wait for results. He has suspected leiomyosarcoma on his lungs and liver and a blood clot in his IVC, he is also...
Hi my name mick I first got cancer in 2016 in bk of leg had radiotherapy and operation all good got all clear cancer came bk 2020 in my lower back again had radiotherapy and six months on chemo cancer had spread this time all over the shop but again got...
Hi all, I was diagnosed with low grade fibromyxoid sarcoma on my neck/back area 6 months ago. As part of the surgical procedure, they removed the tumour, trapezius muscle and levator scapula muscle; and reconstructed the area with a flap using the latissimus...
Hi Everyone I have endometrial sarcoma stage 4B and am currently being treated at Addenbrookes (Cambridge) with Trabectedin. Do any of you have experience of this type of chemo? If so, it would be helpful to hear your experience and whether it has been...
Hi, My partner has just been diagnosed with low grade endometrial stroma sarcoma (at least grade 1b). She had a large fibriod which was degrenerating and so had a hysterectomy 6 weeks ago, we have only just been told about them finding this (it took...
So it's been about 6 months now since my major surgery to remove the sarcoma on the back of my head. Recovery has been hard, but I'm finally at a point where my brain is more bored which outweighs the physical pain I have in my neck and head due to tiredness...
Hi Everyone, I've got a dilemma, 2 years in remission and costs of my insurance are killing me, but I am afraid that cancer will back and the NHS will neglect me again, because Sarcoma is rare. I know, it sounds paranoid, but I am terrible anxious...
I have this swelling in my shoulder that is being investigated. MRI inconclusive and waiting to speak to consultant. Ar night I’ve noticed I have been getting a lot of numbness/ tingling in both my arms. This evening I woke up and my opposite hand...
Well worth watching if you have Sarcoma it features a young woman having a tumour successfully removed from her arm
