It’s that time again….arrgghhhh!!!

Former Member
Former Member
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Hi 

It’s the dreaded scan time again. CT scan this Friday, to see if the radiotherapy has been effective on the tumour recurrence!  
How on earth are we supposed to relax, at times like this?

I’m running about like a headless chicken….. and hiding away from everyone! I just keep planning, and reorganising my funeral, death, finances, as I feel it’s the only thing I have control over Disappointed 

I just can’t stand conversations , as want to shout and say ‘I don’t care what Tom, Dick or Harry are doing!

Is this normal, as  it makes me feel like a horrible person? 



Rant over….. thank you 

xxx 

  • Former Member
    Former Member in reply to Former Member

    Hi Jane I can feel it if I lay flat by putting my hand over the skin on my belly...it sits in an obvious place but when it was first there I was 20 pounds heavier so couldn't feel it properly. I try not to touch it though and I'm just being patient for now as I know radio works over time and beyond treatment for a while I think. I'm really hoping it's working for us both...like you I have tiny mets in lungs which are not having treatment right now so I'm trying to be healthy as possible xx

  • Former Member
    Former Member in reply to Former Member

    Hi Annie. Ah I see, I could feel mine when it was the original tumour , at 19cm. But I can’t feel this one at the moment and really hope I don’t, as want it to have shrunk. How many sessions have you had, I had ten, then found out I’d only had half the allowed dose, so I can have again if need to. 
    Yes I have lung mets too, and just praying I have no more, or anywhere else. 
    xxx

  • Former Member
    Former Member in reply to Former Member

    That's interesting...why have they only gave partial dose? I did wonder if you had been targeted in the same area before and maybe that's why you had ten but maybe they are saving some because I'm having 30 and was told I cant have it there again...unless years had passed x 

  • Former Member
    Former Member in reply to Former Member

    I honestly don’t know, and only found out after I’d asked. No I haven’t had it there before. 
    but was told that the symptoms would be too bad if had the full dose. But at least I can have more if needed, but I hope the dose has done something. 
    How many have you so far? 
    Weird how the doctors all do such different treatments.!

    xx

  • Former Member
    Former Member in reply to Former Member

    I've had 9 so far...mines on the right of the pelvis. Its 10cm so hoping for shrinkage xx

  • Former Member
    Former Member in reply to Former Member

    It's odd how we seem to be following parallel paths.  Your radiotherapy reports are really making me feel that i could be a lot more comfortable.   Heart  xxx

  • Former Member
    Former Member in reply to Former Member
    • Hi Jinny it's quite common practice to seek a second opinion. Medics respect that and I think welcome it at times. I've tried to learn as much as possible so I'm active in the treatment xx
  • Former Member
    Former Member in reply to Former Member

    Hi Jane all the best for today. You've got this xx

  • Former Member
    Former Member in reply to Former Member

    Sending huge wishes for good news Jane xxx

  • Former Member
    Former Member in reply to Former Member

    Thanks Annie.  I've not been refused radiotherapy - consultant doesn't yet know that I'm uncomfortable xxx