Hi! I'm new to the forum and wanted to say hi and see if there was any advice people could share with me.
On Thursday my surgeon called to give me the news they found low grade ESS after an abdominal hysterectomy five weeks ago. She told me not to Google it . Yeah right! . It was very early stages, grade 1a but incomplete as they need tests from the other organs they left in.
They'll do a CT scan and then operate again to take out what was left.
I'm trying to find out more about it, long term management and is there a way forward without some of the oestrogen blockers I've heard about. To be honest, taking them is what's scaring me more. I was doing fine until last night. So any advice would be welcome .
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007