This is for anyone who can't keep on the topic. It's hard not to stray, but if we have 'no specific topic ' we can't go off topic.
It is good just to be able to wander and talk about other things.
I could have named it 'Waffle'. Then I couldn't go off topic.
Hi Seamus the distance you have covered is amazing, I've never read anything about prostate cancer uk "run the month" how did you get started, also my PSA has been below 0.1 for month's and I've been moved from 4 weekly to 12 weekly reviews, would I class as in remission, it's never been mentioned?
Hi Seamus - That's amazing, you must be so pleased to have done what you have done. It just shows when you have a positive attitude and set your mind to something regardless of age or health condition it can be done.
CONGRATULATIONS - WELL DONE.
Best Wishes For The Future - Brian.

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Hi Ulls & Millibob , yes very pleased thanks, but a bit daunted at my ambition to move 1 million metres in the rest of 2023!
My PSA was undetectable (<0.1) during my three years of HT and stayed there until June 2022 when it had risen to 0.2. The last test in December 2022 was also 0.2 and that was when the Urology nurse told me (over the phone) that meant I was currently in remission. He also made the point that I would continue to be tested every six months until I was 5 years post-treatment and then every year until 10 years post-treatment. As long as the PSA stays below 2 they consider that I am in remission and will only look again if it goes above 2.
Sorry I forgot to say that I did the same walking last year and got an email reminder this year. There's a whole list of events you can try on this link:
Seamus,
What you said in your post is my situation.
I would continue to be tested every six months until I was 5 years post-treatment and then every year until 10 years post-treatment. As long as the PSA stays below 2 they consider that I am in remission and will only look again if it goes above 2.
All apart from the amazing amount of walking and running of course.
I still don't have any stamina at all, feel like I did when I finished the Radiotherapy 145 months ago.
Congratulations again on your amazing feat!
And fingers crossed for the Remission to stay.
Steve (SteveCam)
Hi Steve. I was totally washed out after the 20 sessions of RT and did a lot of sleeping. Unfortunately it was mostly during the day which meant that I didn't sleep at night.
I had been a member of the local coastal rowing club for many years and had great support from several friends there who encouraged me to try to get back on the water. One was a retired Physiotherapist and recommended that I try the NHS Strength and Flexibility program and swimming. That's what got me back to a better place from where I regained a lot of fitness and determination.
The NHS S&F program is a set of five podcasts which you can download. I'll try to find the link and put it here.
Edit to add, try this link:
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