wait

Hi W,  sorry to hear of your mental anguish, u have waited a long time, Covid probably hasn't helped.

Just a couple of questions,  u talked about Radiotherapy, have u had that yet?  Have u had the PET scan yet to determine  if there r further mets?

Psa, Gleeson figures would also be useful. Presume u r on hormone therapy?

Steve

I was supposed to have ratio-therapies but stopped
I'm waiting for a pet

Unfortunately this Covid seems to have put a lot of cancer treatments on hold, unacceptable, I know.

How did they know about the original mets, was it a result of Mri scan?

Have u been pushing for the PET over the past weeks?

when they prepared me for radiotherapy, they noticed that I had metastases and therefore stopped the radiotherapy

I am waiting patiently, I thought that when I donated blood, they would be interested in me

sorry to hear your story, things really are tough at the moment. What prompted the radiotherapy three years after surgery.  As stated psa levels and doubling time would be beneficial. I assume you’re on hormone therapy? The normal standard treatment for metastasis is chemotherapy, this obviously brings on a whole load of risks in this climate. 

My assumption is that post surgery your psa was below 0.1 and has just raised this year, I also assume you hadn’t been on hormone therapy until the mets were confirmed. In this case hormone treatment can hold things at bay until risks around corona reduce. I had chemotherapy from sept to jan. once every three weeks for six cycles, the affects last a lot longer than the 18 weeks, It’s hard to actually tell but it’s only the last couple of months that things have settled for me, so close to 12 months, hard to tell if normal. 

one thing in common is that the battle without thoughts are a big part of our journey.  I’ve been reading a book recently Mark Manson “The subtle art of not given a f*ck”. It’s really talks about learning to gauge what matters cares and not to dwell and on the unimportant, of things that cannot be changed. 

Ive been told that modern treatment can give us 10’s of years.

stolen from another member

”yesterday is history, tomorrow a mystery, today a gift”

on initial diagnosis of metastasis I worried about the future, who will look out for my daughter who has significant extra needs, how will my other two children cope, over time I’m learning to let go, put things in place and enjoy today

My thoughts are with you John

I am glad that you have such positive thinking
It will definitely change when I find out what is with me
I don't have hormone therapy
Waiting for a diagnosis and treatment is perhaps the worst
I'll try to call them from Monday
I am also of good cheer because I have to live for my son and my other children
My wife left me with my son and this is the motivation that we will give advice with my son, because I have to live for him. For sure, I will think positively like you do.
when I find out what's wrong with me

I'm sorry but my english is not good
I am from Poland and therefore have communication problems