Results, Appointment.....Finally "Worry"!

Hello Dave

As you are aware we have Stage 4 Community members on here who were diagnosed over 10 years ago - so look on the bright side!

Chemotherapy if it’s offered could extend your life by years and as it affects everyone in a different way - if it’s offered, why not try it - if it doesn’t fit then stop it!

We don’t consider anyone here a “Lost cause” and I am sure you would rather keep on riding your bike than the alternative.

Think about it - life’s good, I should know, I almost lost mine!!

Best wishes - Brian.

Dave (Carl28 ), good luck tomorrow.

Good luck for tomorrow Dave.

I think we have at least one thing in common, making decisions and sticking to them. I've had chemo twice - 2014 after surgery for lung cancer then 2024 after recurrence of prostate cancer (had RT/HT in 2016).

On each occasion I decided before chemo was offered that I'd have it on the basis I could start it and if the side effects were that bad I could stop any time I wanted - they can't make you have it all. I did complete both and so far all remains OK (fingers firmly crossed).

Hope all goes well, all the best,

Derek.

Thanks all. Sorry for delayed response   -  for some reason not got/getting notifications of replies to post!

The costs in side effects v benefits in life lengthening v QoL are indeed a fine balancing act. Tossing a coin possibly as good a decider as any........

Onward and downward.

Good luck all, Dave 

Update, 9/3/26.

Saw the main man today. All pretty low key. He's clearly old-skool, driven solely by psa numbers  -  and on that basis I agree a very good outcome.

PSA down to <0.03 from 4.5 on 13/10/25. A 99.3% fall in 20 weeks of decapeptyl and 16 weeks of darolutamide. This appears to be "an extremely encouraging.... deep and rapid response." (Not his words  -  he doesn't say much!)

Simplistic IMO and in answer to my Qs he simply said scans not part of routine monitoring. I shall have to look into complementary private sector investigation.

I decided not to rock the boat nor risk side effects so declined bone density meds and/or chemo. Dr S said if I wanted either fine, but that he would not push me. Agreed that chemo may not make much difference to progression at this stage.

4 mths of darolutamide issued. Next psa test in 3 mths followed by a phone call from an oncology nurse.

Othrr than psa he mainly seems to go by "how do you feel?". Because I am relatively active he judges me well.

Could have been worse!

Good luck, Dave 

Dave, think that sounds quite optimistic.  

Sounds like you have a few more good years of riding your bike daily

Eh up Dave,

Me thinks the treatment is working and along with all that exercising you will be here for yonks!

Carry on carrying on!

Best wishes - Brian.

I'm very pleased to hear this Dave, prostap and darolutamide (following chemo) has been working for me too (last PSA undetectable). Hoping this continues at next blood test in 3 weeks.

All the best, Derek.

Thanks Derek, David, L1m and Brian for kind replies. 

Cold strong breeze out there today following sunny start  -  but pedals turning so that'll do!

Good luck all, Dave.