All Systems Go

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Well, that was quick. I chased the medical oncologist (Greek God) up this morning and he has had a pow wow with the radio oncologist, so I was told to speak to him as they both thought hubby was eligible for SBRT on the distant mets. Did this at lunchtime and was asked when we would like it done. Whenever we replied. Got a text at 17:30 to ask if we are available TOMORROW  at 15:50 for the planning scan and can we take the PSMA PET scan disc. So all set for treatment starting next week. Having to sort out an apartment near the hospital for a couple of weeks as he predicts it will be 5 sessions on alternate week days.

  • Currently I'm in Crete, 4 sunny days to go.

    Thought the vibes from Crete might help your hubby.

    Haven't been here since 1998.

    It's doing me the world of good.  Trying to find public toilets is another thing!  I have to be careful if you know what I mean!

    Steve (SteveCam)

  • Glad you are having a good break, it's better than any medicine. If it's the kind of toilets I'm thinking of then you need to make sure you are wearing shoes rather than sandals, but it is easier for the men. Have fun.

  • And you call me for all the holidays I have!!

    If you carry on like this you will have a holiday home in the North East and you can change your user name to "Judith Charmers"  RoflRoflRofl

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  • Mizz Chalmers to you!

    I'm just trying to make up for lost time!

    But, it's good for my health, providing I can find the loos.

    Steve (SteveCam)

  • Not really better than medicine, I had to bring it all with me!

    Cyprus seemed to have public toilets, but Crete...  I am managing!

    Love the weather!

    Steve (SteveCam)

  • What's wrong with dropping into a taverna for a coffee or tea for a loo stop - they don't mind.

    We have had a bit of a heatwave in the last few days but it is dropping back to normal now. Make the most of it before you have to return to the UK.

  • It's the local wine we've been getting.

    Steve (SteveCam)

  • We are back home now. Hubby is not so dopey (or not more so than normal). I am convinced it was the first lot of antiemetics as he is a lot better with the new ones which don't cross the blood/brain barrier, and he only has slight nausea coming up to feeding time. Time now to start weaning him off them. There is some bloating and it is definitely little and often as far as food is concerned, accompanied by a cacophony of belching - him I might add and not me. A good way to lose weight for both of us. No other gut issues. He is definitely sleeping for England/Greece but wanting to potter around when compos mentis. So far so good.

  • Hi  .

    Dafna, can I suggest you pick up the baton of Jacob's journey through his 6 sessions of SBRT to the prostate. As it is a relatively new treatment I am sure that those looking at their options will be interested in what happens and how Jacob copes with it. Just think, 2 weeks time and it will all be over. All the best.

    It is now a week since hubby had his last session. He is beginning to do more but the fatigue is the main side effect, along with not wanting large meals, and he has gone off most drinks apart from water. Emotionally it has been a rollercoaster but part of that is due to his PTSD. We are just so lucky that they felt something could be done.

  • Hi AH,

    Well, Jacob will not have SBRT but conventional EBRT over 6 sessions 36gy over 6 weeks.  Once a week. The Oncologist insisted that this will be only target the main tumor and was not ready to open a discussion of why not to the nodes etc. So, I am afraid I will not be in a position to tell the community here about the treatment as it is the very standard. At the time I was thinking of going all guns blazing and to demand more but we both decided to let go as Jacob doing well at the moment and will leave the more newest SBRT ( which Brighton does not have) to later stage when the HT will stop working. 

    Your hubby will do well, I am sure it take time for the fatigue to subside. Our oncologist said that it takes 3 to 6 weeks for the body to recover and you returned home only last week. I was just reading that he fixed a leak today? Well done for you both. Enjoy the home made bread and wonderful weather.

    Lot sof love

    Dafna