Surgery or Radiotherapy? Decision made!

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Decision made.  I’m pT3a, N0 M0 (see my profile for details ).  My extensive research points to a combo treatment of HT / RT / Brachy (NHS and NICE approved).  MDT met again a couple of days ago and their recommendation (without my input) was the same.  I had a consultation at Addenbrookes yesterday with a top prostatectomy surgeon and he agreed with me that my decision was the best one, as surgery would carry at least a 30% chance of recurrence.  So I collected my prescription on way out!   I took my first bicalutamide tablet taken this morning…..so the treatment is underway. Just over 62 days (NHS target) since GP referral so well done to them after a thorough diagnosis.  I feel like a weight has been lifted from my shoulders with regards to timelines (chasing the NHS, politely!), but I’m under no illusion that the next few months of treatment will present challenges.  My wife and I are a strong team and we intend to take everything in our stride and, hopefully, this curative pathway will prevail.  Here we go…..wish us luck! 

  • So, another 3 weeks have passed and we have just completed a week leading hikes with clients. It’s great to be back!  Side effects continue to be minimal:  a couple hot flushes in the night, last less than a minute and back to sleep; no urinary problems, no gastrointestinal problems, no fatigue, and, amazingly, no ED! (No libido either , LOL!). The Tadalafil is so important though, as we can continue that part of our lives (Mrs AW to initiate  of course, as I have no libido) - and excellent for penile health (use it or lose it). I still enjoy a beer after a hike, and some wine with dinner, so it’s not all hardship dealing with this PC….    AW

  • Amazing - I am so pleased for you both. Thumbsup

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  • Thanks for your good wishes. However, I am in no doubt that this war is not over yet. I am a born optimist but I am VERY wary of this cancer, which has a habit of producing some nasty surprises. I am also wary of the medium to long term side effects that can occur due to radiotherapy.  So I am still in the trenches and I know that my medical team have an armoury full of different treatments if the cancer has resisted my initial full on brachytherapy boost attack on it. They also can help me if side effects appear. So in the meantime  I intend to get on with life.   There is a great anecdote that sums my approach up:

    When I get to the pearly gates, I don’t want to arrive in a pristine Rolls Royce, engine purring, with lots of money in my account back on earth, and say “that was a good life”      I want to skid to a halt in a clapped out Ford Capri, skint, and scramble out shouting “Wow! that was one hell of a ride!”

    AW

  • Hi AW,

    That's the spirit! 

    Lots of love

    Dafna

  • I heard this anecdote years ago but could never wpquite remember it so it was good to revisit it in your post! The other one I’ve heard is that you should plan your finances so that you spend your last pennies on the last day of your life - no pockets in a shroud :) when do you return back to uk? 

  • Hi WW, we’ve got 5 nights in an apartment tacked on the end of this trip (which is what we normally do).

    The other phrase I’ve heard is that the best way to leave this mortal coil is to aim to have your last cheque (to the tax man) bounce Joy 

  • Oh, I like that one!!!!!!

    enjoy your stay!

  • Hi AW great to see how well life is going for you and your partner, We keep things simple in Yorkshire, we just say, you can't take it with you, take care.

    Eddie

  • Good Morning AW

    A cracking post and I hope everyone who reads it takes note.

    Like you I fear my 3 years on HT with RT thrown in is the start of a life long battle. I know in my mind with an initial PSA of 182 the buggers should have gone "walkabout". I know after 29 months my PSA is down to 0.33  but I can't get it lower!!

    However - as I always say I am a "lucky boy" and thanks to my medical team every day is a bonus.

    I woke up this morning to bright clear blue sky and it's going to be a cool 28c today - yes I am in Turkey for the next 3 weeks and boy Lorraine and I love life.

    (I had a Ford capri once - amazing car).

    Kind regards to you and Mrs AW - Brian.

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