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Hi Anyone here have a Pituitary tumour that’s grown into their brain? I’d really appreciate talking to someone who has gone through the same thing? I had surgery in 2020 but half of it is inoperable and has grown into temporal lobe. I’ve recently had...
Hello all, This is unusual for me as I'm a very private person, but after a long discussion with my partner about not having to shoulder the burden I thought I'd reach out to see if there is anyone who shares any similarities with my story. I'm in my...
I've now completed my treatment of surgery and radiotherapy for my pituatary tumour. I feel like a bag of spanners, exhausted, on hormone replacement meds, and uncertain of my future.Ive been referred to Neuro psychology and struggling with cognitive...
Hiya ive had tbnc breast cancer had chemo and radiotherapy but wasnt feeling great, getting headaches and pressure in my head and buzzing in my head, the oncoligist sent me for a mri scan on my head , no cancer but my pituatry gland is imflamed, what...
Hi all Thought I'd introduce myself and give some history. I have been suffering with multiple symptoms for some time and have, like others in the group, come up against GPs who want to treat each symptom individually. I have always voiced my opinion...
I have suffered with a pituitary tumour since 1999. Today at 76 I still attend hospital each year, that was until lock down happened. At one time my prolactin went from over 2000 to 50 in a matter of no time.for the past I would say it has been constant...
Hello everyone, I hope you are all doing well. Im back and forward to the hospital and have just been told that that I either have surgery now or next year and keep having tests… Does anyone have some advice about pituitary surgery to help me with my...
Hi there, I´ve been struggling with this diagnosis and truly understanding what this is for almost 10 years. I kind of want to share my experiences and more importantly, find out if anyone else is having the same problems/symptoms as me. I´ve just been...
Hi there - copied this from main forum into here to say hello and introduce myself. I’m new here! I did used to belong to the pituitary foundation forum but it seems to have been inactive for a few years so hoping I can find help and support here (and...
