I'll health retirement- giant macroadenoma

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I've now completed my treatment of surgery and radiotherapy for my pituatary tumour.

I feel like a bag of spanners, exhausted, on hormone replacement meds, and uncertain of my future.Ive been referred to Neuro psychology and struggling with cognitive functioning, and anxiety.

I've to return to work in the next few weeks,and quite literally can't afford to be off work any longer.

I'm uncertain how I will manage and I've given consideration to applying for ill health retirement if possible.

Anyone have experience of this process ?

I

  • Hello, 

    I noticed your post and although I've not personally experienced taking ill health early retirement - I did some investigation and it may be possible for you to do this depending on your circumstances.

    The first task is to speak with your pension provider, there are certain health conditions that are accepted as a condition for drawing your pension earlier than 55.

    I don't know your age, but if you are 55, or older with a personal pension you can draw on that anyway. Speak to your pension provider for advice on what options are available. They will probably suggest that you also speak with a financial adviser. 

    https://www.unbiased.co.uk/

    Unbiased offer advice for choosing an adviser if that's a route you'd like to take. Of course I realise that this comes with a financial cost. However, good Financial advice can be money well spent when thinking long term financial security 

    If you are referring to your state pension contact the government pensions department via their website. 

    https://www.gov.uk/contact-pension-service 

    In all cases I'd recommend actually talking with someone. In my experience it can often result in better and more helpful guidance; rather than filling out an online form.

    Good luck with your recovery. I had my surgery last June, and although I had a blip with my sodium levels after the op, I do feel better now.

    Recovery is a journey and hormones do play havoc with you mind and body - don't forget that you are unwell and the way you are feeling now can be a result of being unwell. Get support, get advice, talk with people and you will make it through. That silver lining may be closer than you think.

    Take care 

    Wayne

  • Thanks for your advice Wayne.

    I'm encouraged by your progress to feeling well again.My frustration is compounded by having 3 consultants involved in my care,but none of them being a lead to Co ordinate my care.I desperately want to feel well and have the ability to physically and emotionally function again.

    Thanks for responding. David

  • You're welcome.

    When I had my initial assessments I was allocated to a specialist pituitary nurse. They are an excellent resource for what you mentioned.

    I'm unsure if it's standard practice to be assigned one, but it might be worth enquiring and possibly making use of them.

    Keep voicing your concerns to your healthcare team, and absolutely do not suffer in silence. There is a duty of care that they will be happy to provide. Sometimes it's just a case of being politely persistent when you're not getting the answers you want and need.

    All the best