Recently diagnosed with endometrioid epithelial ovarian cancer and endometrial cancer

My anxiety has been awful too. I can't stop thinking about it.  I remind myself that I have got through major surgery, although now with this diagnosis I've almost forgotten that. 

I've been told it is belt and braces too because the cyst burst before surgery. I am rather annoyed as I went into hospital with severe pain when the cyst burst. Had scans which showed something on ovary. Looked like an abscess and my stomach had extra fluid in it. They said it hadn't ruptured and the fluid was inflammation. They wanted to do planned surgery which ended up being 20 days later. By which time the abscess/cyst had refilled and had to be drained. The histology shows that the sample of fluid didn't contain malignant cells. I guess though they don't know for sure 

It's taking me a while to process and I don't feel I have all the answers. They said it's once in a decade that a cyst ruptures and endometroid cancer is found. That's why I can't find much info about it, I think.

Maybe Tuesday will provide a route forward xx

Your story is so similar to mine.

After surgery I was told it wasa borderline tumor but histology confirmed it was a endometrioid endocaroma but luckily grade 1.

I'm just so frightened that because cells have leaked out and it will return but I guess that's why we having chemo .

I'm just not sure how I will ever move forward without it in my head the whole time 

So draining isn't it xx

I also feel so gutted that it burst before I had surgery. Mine is grade 2.

I feel exactly the same about never being able to move on with life. Maybe once the chemo is done, people find a way of doing that. I'm absolutely exhausted and know I need to be strong to face chemo. 

Would you mind me asking if they biopsied your lymph nodes during the operation? My omentum was but no mention of lymph nodes. I can see on this forum that others had theirs tested. Xx

My lymph nodes have never been mentioned at all 

I'm assuming they would have showed up on the CT scan ?

The thought of chemo next is totally frightening but I tell myself look how many people do it and come through it.

Not looking forward to losing my hair at all but then I again I tell myself no one does 

All I've done is cry really and no idea how to deal with it all xx

Yes I assumed they would show up on CT scan too. I'm probably over thinking it but sort of feel like I'm putting my life in their hands.

Sounds like we are having similar thoughts. I keep reminding myself that lots of people have chemo. 

From what I have read, one of the treatments - carboplatin - doesn't cause hair loss. 

I've had alopecia for some years now and have worn wigs for the last 15. If that's an option  you would consider, I know of some super companies.

I wondering whether on Tuesday we might feel like there is more of a plan. I would be interested to know the benefits of having chemo for this type of cancer and whether they outweigh the risks of the chemo. 

It really is all too much. I just want to be carried through it and appear on the other side! 

Any wig recommendations would be fantastic.

I'm sure you look fabulous in them .

I think they do a dual chemo carboplatin and paxcetil?

But for our grades I'm not sure if it be dual or just the 1.

I'm a hairdresser so the idea of losing my hair is a big thing but I also know if it stops the C coming back it has to be done .

How are you generally from the operation?

Im 7 weeks down the line and just a twinge here and there now and generally feel well I'm just anxious beyond anything .XX

I get that losing hair is a massive thing but the wigs are amazing and being a hairdresser you'll be able to make it perfect for you. 

I can highly recommend Pretty Little Wigs by Hollie. She is in Liverpool. I live in the south west so have had them posted. My latest one is from Wigs by Kirstie in Berkshire. Would highly recommend too. 

I've read the same about that combo of chemo. I have quite a few allergies and people can react to them so not sure what they will offer. Just another worry. 

I'm 5:weeks post op and would be feeling great if didn't have the diagnosis. Like you sometimes an odd twinge but that's it really. I am suffering a bit from the surgical menopause. Terrible hot flushes and night sweats. I'm 51 so don't think I was quite through all of that but now it has really hit me. 

Just wish it would all go away! Xx

Thanks for the recommendations ,I shall take a look for sure 

It's nice to chat to someone who gets exactly how I'm feeling .

I'm 55 and I'm not feeling to bad menopausal wise..odd hot moment but I'm not sure as know I'm not mentally in the right place after all the stress if that makes sense .

Did they say yours was hormone fed?

I'm assuming yes as it the same as mine so no HRT?xx

That's a question I was going to ask. From what I've read the endometroid ones tend to be. 

Not really that bothered about hot flushes, seems something in nothing compared to diagnosis.

I'm so glad you replied to my random message on here. My family are being great and are full of optimism as they like it's stage 1 but unless it's you, it's hard to explain how it just takes over all thoughts and worries and I'm finding it hard to just do the normal things I used to enjoy. 

Just wish I'd gone to see a doctor weeks before it burst then may not need chemo. The symptoms were so vague. I put it all down to the menopause! Xx

Same as me totally thought I was having a food intolerance because I was so bloated .

And wish  my operation been the week before I wouldn't have had the rupture and then no chemo .

Would love to know how your appointment goes Tuesday and through your chemo journey if that ok ?

Makes me feel better be able to chat to someone who gets it . Xx