Recently diagnosed with endometrioid epithelial ovarian cancer and endometrial cancer

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Hello

I'm new to this forum and have read many of the lovely and supportive replies that people have posted and they are such a joy to read.

I have recently undergone an abdominal hysterectomy (October 2021) and also had both my ovaries removed due to a suspicious looking ovarian mass (and elevated CA-125) which proved to be cancerous. I was pleased to hear the ovarian cancer was only located in/on the right ovary and had not spread to my lymph nodes and have been diagnosed with stage 1c2 endometrioid epithelial ovarian cancer (the c2 relates to the tumour rupturing during during surgery I believe) and I was also diagnosed with stage 1a endometrial cancer too.

I asked the consultant of the grade regarding how fast the ovarian cancer was growing and she said the middle one so neither fast nor slow. I haven't yet received my letter from the hospital as I am usually copied into the letters which the hospital send to my GP so if there is anything which seems unclear please let me know and I can ask the hospital for more information or the doctor that I will be seeing soon when I begin my chemotherapy.

I will be having six cycles of chemotherapy (carboplatin) due to the tumour rupturing during surgery and was told this is the 'belt and braces' approach and which I think is the sensible approach to take.

I was also told the ovarian cancer I have is relatively rare compared to other types of ovarian cancer. I have never (that I am aware of) had endometriosis. This is a lot of information for me to take in and I am coping very well I think as due to my age (49) I have also gone through an immediate surgical menopause too but thankfully I'm not experiencing any hot flushes or night sweats (or not yet anyway and fingers crossed it stays that way).

It would be good to hear from anybody that has knowledge of endometrioid epithelial ovarian cancer. Despite the diagnosis of ovarian cancer and endometrial cancer I still feel incredibly lucky this was found at stage 1 however following chemotherapy I will do everything I can in terms of being aware of any signs to look out for that either my ovarian cancer or the endometrial cancer has returned. However, I'm sure in due course I will be told what the ongoing checks/monitoring/blood tests will be.

If anybody has any tips or general advice regarding anything that I've posted it would be lovely to hear from you.

Thank you

Cantbelieveimhere over 2 years ago

Hello, sorry to find yourself here , but welcome all the same , everyone here is very helpful and kind.

If you read my bio , you'll understand more about me.

Im 43 and went into medical menopause about 8 weeks after my op , I have been prescribed a non estrogen tablet that has been a godsend.

Im so pleased you caught OC early. I don't have any information for you, but just wanted to give you my support. XXX all the best.

Hollybud over 2 years ago

Hi.. I'm in the early stages of my journey, I have just been diagnosed with oc which has traveled into lymph nodes, I am waiting to hear what treatment I will be taking..it's a scary time but what can you do....it sound like you oc has been found in the early stage ( fab) which can only be a positive and you seem to have been told a lot of information, I'm sure someone on here will be able to help you.... I to just wanted to say Hi! and it's good to talk! I have just recently joined but already feel some sort of peace knowing others understand my worries...so in the words of Strictly: Keep talking!!!

Hollybud over 2 years ago in reply to Hollybud

Hi all ..

Hollybud over 2 years ago in reply to Hollybud

I have received a message asking me to attend the hospital tomorrow... Is this the routine to maybe discuss my options..Can anyone enlighten me, I'm hoping this is the norm., My worst fear is Nothing can be done.

Markg1 over 2 years ago in reply to Hollybud

It's probably the specialist has looked at all the info he has and fingers crossed wants to start the process etc quicker , I'm sure it can only be good try not to worry yourself

Cantbelieveimhere over 2 years ago in reply to Hollybud

Let us know how it all goes, all the very best.

Sarah16 over 2 years ago in reply to Cantbelieveimhere

Hi Cantbelieveimhere, thank you for your reply to my post. May I ask what the name of the non-oestrogen tablet is that you are taking? I’m not experiencing any hot flushes etc yet however it would be good for me to know the name of what is you are taking just in case I need it too at some point, thank you.

Cantbelieveimhere over 2 years ago in reply to Sarah16

Hello , most certainly, you'll need to get in on prescription. My oncologist doctor gave them to me , 2.5mg Oxybutynin .... It's actually used for an overactive bladder but studies have shown in small doses, that it works for hot flushes.

Hollybud over 2 years ago in reply to Markg1

Well hi everyone...saw Doctor today total shock, my cancer has no limits my overies are very enlarged and cancer is in lymph nodes ( expected) bones and pelvis..with bit and bobs all over, OMG I don't do things by halves,! I'm having another scan to see if they can find where cancer has started from then biopsy then Chemo..so that's my news, they also mentioned numbers and I'm 500..(wow) and stage 4 advanced...( I did say oh well on a stage of 1-10 that's not bad.. wishful thinking i do know it's 5.haha ) hope someone has some better news!!!!!! On the good side I'm going to see a George Michael tribute night on Sunday...so not all bad. Xxx

Markg1 over 2 years ago in reply to Hollybud

Wow sounds like you have alot going on , also on the bright side my wife's sounds pretty much the same and stage 4 also and her tumors are shrinking and she is slowly winning the battle ,

So you can win to keep your chin up enjoy your concert , then time to kick this cancer in the ass and say goodbye to it.

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Recently diagnosed with endometrioid epithelial ovarian cancer and endometrial cancer