Recently diagnosed with endometrioid epithelial ovarian cancer and endometrial cancer

You are so right... We can fight this! Your wife is, I am...but I can't lie stage 4, wow the top of the shop, was a shock, I'm going to get chemo first so it just one step at a time, your input is so helpful as your ahead of me so your giving me hope which is what I need .thank you . Now you say your wife is doing well responding which is wonderful! But how about you?  

I'm alot better now I know she is winning the battle , at first it was hard I stopped work as was in tears all the time , it doesn't help when i am an emotional person as it is let alone with this going on , I still have days when I get upset bit thats to be expected ,, thank you for asking so kind of you.

Time for you to kick this stage 4 just like my wife has you got this 100 per vent

Hi Sarah, 

I hope your well. I can see you wrote this about a year ago so hopefully you have had a good year.

Just wanted to reach out and let you know that I am 34 and I have exactly the same diagnosis as you and just about to start chemo. I'm not an expert on cancer by any means, but doing all I can to learn about this so I can try and understand how it happened and if there is anything I can do to help myself heal. It is thought my cancers are two separate concurrent cancers -  like yours by the sounds of it. Most doctors have advised they have never witnessed such a thing in their careers? Thoughts and prayers to you xxx

Hi Gemma, lovely that you have reached out to me.  If I can help you please just ask (you may need to tag me or private message me so that I am notified).  

I am feeling much better thank you.  

Do you know which sub-type your ovarian cancer is?  e.g. high grade serous, endometrioid, clear cell, etc. 

I presume you are just having the chemo drug carboplatin? 

I do hope everything goes well for you xx

Hello Sarah16 thank you for writing back to me, sorry for my late response - surgical menopause has caused my brain to literally not absorb anything aha. My diagnosis is identical to yours other than I am 1c endometrioid epithelial ovarian cancer without the 2 after - my tumour also ruptured but no cells came out which i think might be what the final number refers to (although not sure) and I was also diagnosed with stage 1a endometrial cancer too. They are sure my cancers are completely concurrent, synchronous, yet completely different, even though they remarked that they looked very similar. No cells or spread from one or the other.

It was a big shock as they were only going to give me the mirena coil for the 1A womb polyp, thankfully I insisted on a hysterectomy as I felt too anxious to just have the coil and I had been on a long journey with my local hospital already who thought my periods had stopped due to every possible reason but cancer. When I went to freeze my eggs at another hospital they found the other tumour so I didn't get anything frozen and my local hospital did the hysterectomy. They left the non suspicious ovary in as they thought the egg freezing team had made a mistake. Thankfully, I then got transferred to the Christie (who have been amazing) who then re-did the whole operation and took everything. Much like you my remaining ovary didn't show anything suspicious thank God - but it was too late for my fertility. As my local hospital got it wrong twice and everything was moving so quick after moving so slowly, I felt I could not risk freezing the eggs from my right ovary as I had lost faith and just wanted to get everything out. Im sad about that, but mostly happy to be alive and that it got found at stage 1. 

Im getting 6 rounds of just carbo and after that they said things look optimistic for me and so I'm feeling positive about that too. Mine is recommended chemo, but they said the chemo is not as essential as the surgery. Needless to say Im going to opt in!

Many doctors have commented on how rare and mysterious my diagnosis is, so I did a search of the forums and found your post and reached out. Its great news that your doing well. Did they manage to find out what happened? (feel free to private message if you would prefer). Im being sent for genetic testing as they said at my age (33 when diagnosed/otherwise completely healthy - normal BMI non smoker, like a wine lol but nothing unusual) that its got to be caused by a mutation, but I have no family history. I might never know, but at least I know I'm not the only person in the world to have experienced this!

Thank you again for writing and have a lovely xmas xxx

Hi Gemma, I've sent you a friendship request and then when you've accepted it I'll be able to private message you as at the moment I'm not able to.  

I found this re stage 1 ovarian cancer in case this helps too:   

Stage 1 ovarian cancer | Cancer Research UK 

Hope you have a lovely Christmas too xxx