Hi folks-
Following CA125 rising steadily at every follow up since debulking and chemo, a CT, and then PET scan has confirmed recurrence in lymph nodes in my abdomen, chest and neck (para-aortic, mediastinal and supra-clavicular).
I've been advised these are inoperable, and radiation isn't suitable due to the spread. I haven't been given any prognosis in terms of time or anything, and having a CT scan today to monitor any further spread.
My oncologist has suggested hormone blockers (Anastrozole) to help suppres and control the spread. I can't find out much about these being used in ovarian cancer; it seems to be mostly breast cancer patients. Has anyone any experience of going on these? I am 52, an had surgically induced menopause at debulking.
Any thoughts welcome
PD x
I noticed that your post hadn’t had any replies yet, so my reply will give it a nudge to the top of discussions in the hope that you’ll get some relevant replies. I had a different gynaecological cancer myself, and so my treatment was different and I had a different type of recurrence.
I’ve searched through the group to see if anyone has got experience of Anastrozole with Ovarian cancer but unfortunately didn’t find any relevant posts. However, it maybe that there is someone taking this who has not yet posted.
Has your oncologist been able to give you any feedback from other patients?
Sarah xx
Hi Pink Dalmation.
I am sorry to hear of your recurrence/
Hormone blockers and hormone treatments are used in the treatment of some womb cancers.
chellesimo are you able to offer this lady any advice?
Jane
Thank you jane2511
for the mention.
Hi Pink Dalmatian
I am so sorry to hear about your diagnosis, and finding yourself in this unusual situation where this isn’t much information. My cancer is a rare endometrial sarcoma, I had a hysterectomy in 2009, and have been on letrozole and then anastrozole after a lung re occurrence in 2014. Some of my lung mets were not operable and too many to have radiation on the left lung, however I did have a large tumour removed, and then radiation on the right lung. The other tumours have solely been treated with anastrozole. They have all shrunk, and although are still there, they are considered unmeasurable.
My cancer is estrogen fed, so the anastrozole starves the cancer of all estrogen so it has nothing to feed on. The side effects of this are varied, but they are very much like menopause symptoms, ie hot flushes, weight gain, brain fog, aching joints. But unlike the menopause there is no end, you stay in this menopausal state. For me it has been tough, but anastrozole has been a life saver.
I hope the CT went well for you, please do let us know how you got on.
