Hip and leg pain leading to diagnosis?

So sorry Karen that you have now been diagnosed and have to try to accept all the information etc..  I hope things are put into plan quickly and you have plenty of support around you.

Make sure you take as much support as you need from everyone around you and I found this place my safety net when my dad was diagnosed 13 years ago.  We fell into a lovely group of friends and all supported each other which was great as obviously sometimes you need to spill out and don’t want to upset the people around you.

Im here anytime if you want to talk and I’m keeping my fingers crossed for you that it turns out to be a good prognosis.  Will let you know how I get on my appointment isn’t until later on this afternoon the waiting is driving me insane!

thinking of you

Em

Ah Karen, not what I wanted to hear,

Insert your own sweary words here *&£""*/?!!!!!. Bother the cancer. 

Bother and B*?//!*£ 

Right enough of that,  let's get practical. Game face is something I have great experience of. You'd be surprised how good you get at it especially when you are the one everyone relies on. So little man will be ok. There will of course need to be some conversation about mum not being well but kids are remarkable resilient. My lad found it comforting to talk to a peer whose mum also had cancer. I know that your son is a lot younger than mine so hopefully lots of playtime and some simple explanations sometimes will help.  Especially when you have surgery as all routines will be out of the window. It sounds like you have the support of your mum and dad so that is really good.

Goodness you do have a long way to travel! Wow is there nowhere nearer? But what needs doing needs doing and remind yourself its not forever. Just ridiculously inconvenient. The relief you feel when they've cut the damn thing out is fantastic. You will feel rough from the surgery but blimey...the cancer will be out! Just like that. Amazing! My tumour was 15cm long and I lost a stone in a week because of that fat potato. Not the diet of choice that's for sure. Can you imagine how good that will feel when its not pressing on your back. Bliss.

I have a feeling you don't live anywhere near me (north Hampshire) but if you do I will happily come and visit.

Time to pull on the fighty pants....we can do this!

Sending mega hugs

Sheila xx

Hi Sheila,

thankyou for your lovely reply! Think i’m still a bit shell-shocked to be honest. Saw a lovely GP today as I was told at the hospital that i’d need to inject myself daily with a blood thinner and get various other meds. She said that I had an advanced tumour measuring 7x6x6 and it is in the womb/cervix. Can’t believe i’ve been having normal cycles whilst this evil orange has been growing....... Now I wait. Am not the best at waiting. 

I live in Thurso up in the far north of scotland and will have to travel to Inverness for treatment. The nurses in the hospital up here told me that I could be out in just a few days after surgery and that I could get chemo there. Only 21 miles away. That would be so much easier all round. 

My wee lad knows that mum has a bad leg and tummy and that the doctors are going to help me. That’s enough for now I think? Gawd. My parents are a great support but are getting on in years so I feel guilty about putting upon them too. Am certainly running the gamut of emotions today.

Going to take one of my new painkillers now and hope to get some decent rest... Haven’t managed a full night’s sleep since last September.... 

Will have a wee giggle to myself tomo morn when I put on my big girl fighty pants!!!! Game face and fighty pants - what can go wrong??

Huge hugs to you

Karen xxx

Hi Em,

how did you get on? Been keeping everything crossed for you. Yes, I think we all need a lot of support at this time, it’s very frightening and it’s hard not to let your brain go into overdrive..... 

Hope to hear from you soon

Karen xx

 I've got chemo tomorrow so I shall wear my fighty pants too in honour of you!

We are almost completely at opposite ends of the country . Not fair.

Well it looks like they have good plans to sort your evil orange out like my stupid potato haha. I know its a crazy shock at the moment but it'll be gone soon so all this will be worth the inconvenience/harassment/discomfort. Its good that the chemo trip won't be so daunting. 

I think you are right about keeping it simple with your little boy. No need to get scary with too much info. Hope you have friends you can vent and share some of this too near by. Of course happily vent on here...I'm a good listener.

Hope you get some proper rest. In some ways you can take comfort knowing this is on the way to being tackled and no longer a mystery you are worrying about. knowledge is power.

Rest well Karen! haha

Take care lovely

xxxx

Best of luck to you tomo Sheila. I will be thinking about you! Let me know how you get on, if you get a wee minute.

Big hugs,

Karen xxxx

I’ve been told that hopefully as my ca125 is normal I should be okay but nothing is definite until removed.  I apparently have 3 one of which he explained as one attached to another. Said billioid or something and drew a shape like the top of a heart.  I will be having removed pretty soon as will be put through as emergency still.  Thank you for thinking of me and hope your ok and your brain is settling down a little.  Hope your chemo is going okay today too Sheila.  Thinking of you both x

Afternoon Karen,

all good. Would have been home a lot earlier if my Onc had ordered the right amount of chemo from the pharmacy. On the plus side I got extra coffee and a slice of cake for my troubles. Not all bad.

How are you feeling today?

Sheila xx

Thank you Em, 

Fingers crossed for your 'removal'. It's such a mighty relief when it's gone!

All is well with the chemo so now I can fuss over you two

All the best

Sheila xx

Afternoon Sheila and Em,

An extra slice of cake is always a good thing in my world. Hope you are home and resting now. Em, sounds positive if the ca-125 is normal? Crossing everything for you. Spent the day here waiting for the postie but nothing. Did I mention that I don’t like waiting......? Lol

My leg had been really sore today so i’ve been spooning in the Oromorph, to no avail. Tried just about everything now. Horrible. Trying to stay positive and had loads of visitors but still feel very alone. It’s a hell of a situation isn’t it? Still, my wee boy is home from school now and we’re tackling the homework and having a giggle!!  

One day at a time...

big hugs to you both,

Karen xxx