knee and leg pain

FormerMember
FormerMember
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I have just had third chemo session and the pain in my knees and lower legs is awful. Couldn't sleep last night because of it.  Why does this happen? And any hints for dealing with it? Ibuprofen and paracetamol barely touch it.

Louisa 85

  • FormerMember
    FormerMember

    Hi

    What is the name of the chemotherapy drug you are having; also are you having any other meds with it like G-CSF type injections to build up your white cell count ?

    G n' J

  • FormerMember
    FormerMember

    Morning 

    Just noticed you asked a nurse about weird feelings in fingers and feet..

    While you wait for a reply you could check out this Mac Info page about Peripheral Neuropathy as some chemo drugs can cause this.

    G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much Dreamthief,  that was very useful indeed.

    Louisa

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Louisa /  

    How are you feeling today re: hands & feet ?

    May be worth letting your onco unit know about this if there is no change or it seems to be getting worse over the next few days.

    IF this is PN it can get worse as you progress through your sessions. Sometimes they can reduce the dose of your chemo by 10% or 20% to lessen the impact.

    Which chemo regime are you on by the way ? as it may be worth asking other members of the group how they got on with it and could offer you more experienced replies.

    Take care, G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Dreamthief

    Thank you for your  support ... much appreciated.  I am on Carboplatin and Paclitaxel.  Has anyone else in the group experienced these symptoms in hands and feet? Please let me know.  I have oncology appointment next Thursday so I will definitely mention it then.  Reducing the treatment sounds a bit scary! 

    Thank you

    Louisa 85

  • FormerMember
    FormerMember in reply to FormerMember

    Hiya Louisa / 

    This is mentioned as a common side effect of Taxol/Carbo (what it is commonly termed as) on this info page

    If you type taxol carbo into the groups seach bar any messages mentioning it should be listed.

    I'll 'tag'   and  as I think they are around session 3 of Taxol/Carbo.

    Hopefully you can compare notes and help eachother.

    G n' J

  • Hi Louisa,

    I am here with womb cancer but I've seen a lot of posts in this group lately which mention the ovacome online community, you might get more responses there, I'll put a link to that and some of the other ovarian cancer charities below.

    Target ovarian cancer
    https://www.targetovariancancer.org.uk/information-and-support/what-ovarian-cancer 
    Ovarian cancer action
    http://ovarian.org.uk 
    Ovacome
    https://www.ovacome.org.uk 

    Lots of love 

    xxx

  • Hi Louisa,

    And hi Dreamtheif, Thank you for tagging me.

    I've done round 4 now and have struggled with joint pain, particularly in my feet, ankles and hips. I asked if there was anything I could do and was advised to take hot baths and ibuprofen. I must admit, I thought taking a bath would be a waste of time but one morning when it was particularly bad I tried and it did offer some temporary relief. 

    My pain isn't constant, mainly first thing in the morning, late at night or if I sit still for too long. I hope that the next two rounds don't make it worse but it hasn't got worse between 3 and 4. 

    Goodluck with your treatment and feel free to contact me if you want to ask anything. As Dreamthief said, Artymiss is at the same stage, she may be able to offer some advice. 

    TT xxx

    If the plan doesn't work, change the plan but never the goal!
  • FormerMember
    FormerMember in reply to FormerMember

    Thank you!

    Louisa

  • FormerMember
    FormerMember in reply to Arla

    Thank you Arla I will follow these up.

    Louisa