Possible ovarian cancer, scared crapless!

Hi Leigh

I'm in exactly the same boat as you. Was waiting for a minor op to remove a lipoma (benign) when the MRI scan taken picked up I 2 x cysts/tumours 12cm and 8cm. No large stomach but i'm a big lady anyway so probably wouldn't notice.

CA125 came back over 12000 (yes 12 thousand) which I was told was virtually off the scale, however I do not feel poorly in the slightest!

I has more bloods done on Friday and will get the results tomorrow. My CT scan is next Friday.

The freakiest thing was when they doctor asked if I would like to be introduced to the Macmillan nurse? I knew then I was in trouble!

So good luck, lets think positive and follow whatever course it takes us on.

Not looking forward to the full hysterectomy or chemo if needed. My head could be in a completely different space by this time next week.

With Love

Kay xxx

Hi there. The waiting is the worst. Waiting for appointments, waiting for blood test and scan results, waiting for treatment to start, waiting to find out if treatment is working. I have been going through this on and off for 13 years and, to be honest, it doesn't get any easier. What I do manage to do though is distract myself. Before I went in for recent surgery, I did all my household accounts and got all my finances up to date. Can you find some small projects that need doing,  which will temporarily take your mind off things? Distraction is the key at times like this because there really isn't anything you can do. Take care xxx

Hi there. The waiting is the worst. Waiting for appointments, waiting for blood test and scan results, waiting for treatment to start, waiting to find out if treatment is working. I have been going through this on and off for 13 years and, to be honest, it doesn't get any easier. What I do manage to do though is distract myself. Before I went in for recent surgery, I did all my household accounts and got all my finances up to date. Can you find some small projects that need doing,  which will temporarily take your mind off things? Distraction is the key at times like this because there really isn't anything you can do. Take care xxx

Hi Kay!

Yikes, that’s high! Just know you are not alone.

i had a hysterectomy many years ago, it’s tough but not as bad as you’d think. You can get through that for sure. It’s everything else that frightens me. 

Although my kids are 19 and 20 so not babies, at 40 I’m not ready to consider how they might cope without me. 

If you need to rant about anything, I’ll be here x 

Hi, my ca125 was 8000, I thought I was the highest you could get. Look at us overachievers ;) 

Thank You.

Blood last week didn't flag anything else and CA125 has gone down to 8600 - still a ridiculous number but less than the original 12000!

Have my CT scan tomorrow but I know they won't tell me anything then and the 'reveal' appointment is next Thursday - not feeling that brave but it is what is it is.

Nice to talk to you - be good to keep in touch for a bit of moral support.

Take Care

Kay xx

Hi Audrey

How are things with you and where are  you on your journey with such a high number.

Shame it's not the winning sum on a lottery ticker instead of tumour markers!

Kay x

Hi,

ive had 3 chemo and I’ve responded really well. Do op on 22nd :) 

Hi Audrey

Do you mind me asking what your symptoms were? I am not even feeling poorly but the CA125 has obviously caused major concern.

I take it you mean hysterectomy on 22nd? Good luck with that.

Did you have a CT scan and did this pick up any other cancer?

Sorry - one last question - how do they administer chemo - tablets, liquid, drip - how long for each session and have you lost your hair.

All so sudden and I'm still in shock this could be happening to me and so much information to take in.

Thank You for being so kind to respond.

K

Hi Leigh

I'm 51 and my children are 23 and 20 but still not easy to think about what could be ahead.

I'm sorry if I'm being ignorant but I assumed if you had had a hysterectomy that you could not get ovarian cancer? Am I missing something?

K