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Can anyone advise whether I should be able to have the shingles Vacinne. Can anyone advise whether I should be able to have the shingles vaccine on the NHS? I believe that currently the NHS are giving it to those turning 65 and those aged between...
Hi, I’ve just recently been diagnosed with JAK2 and ET. I am confused with the conflicting information I have received. In the booklet I was given on MPN’s it states bone pain as a common symptom however when spoke to my specialist they said bone pain...
Hi everyone, I'm new here Hope all are well. Was wondering if anyone has translocated kidney cancer, seems to be rare especially in adults.
in response to tvman I am attending City hospital. My bloods have never been right since I finished chemotherapy for AML. I have been getting lots of infections caused by low white cells so it seems my MDS is affecting my white cells mainly. I am on...
Hi, I have just joined the group. I am a 36 year old mother of 2 girls. I was diagnosed at the age of 16 in December 2004 (20 years ago) with ET. I was under quite a few amazing haematologists, how my last one died during Covid in 2020 and I haven’t seen...
I have been diagnosed with Poroid Hidradenocarcinoma, a very rare cancer of the sweat glands. Has anyone else been diagnosed with this?
Hi, I'm new here and had two diagnoses with cancer. My 1st was a rodent ulcer on my nose. (I'm sure another way is growing) anyway that's not what I'm here for today. My 2nd diagnose is for ECCRINE POROCARCINOMA which I have been told this is a very...
Hi everyone I have been on ruxolitnib now for over 3 years. Its making me anaemic as well as causing fatigue. I'm struggling with the fatigue as it's have a big impact on my daily life. Had to go on ruxolitnib as I have PV and the itchy skin was unbearable...
My wife is 12 days away from her second stem cell transplant. In 2020 after being diagnosed with Multiple Myeloma she went through an autologous transplant with chemo maintenance over four years. Then on a routine visit with her doctor we were informed...
Hello! I am 37 and have had PV for 11 years along with Budd-chiari syndrome. I recently got diagnosed with a small bowel neuroendocrine tumour too. I am currently in dabigitran 150mg a day, aspirin 75, peg interferon once a week and recently started ruxolitinib...
