• Replies 1 reply
  • Subscribers 27 subscribers
  • Views 208 views
  • Users 0 members are here

More from this forum

Community News

Essential Thrombocythermia

MrsD
  • 1 reply
  • 27 subscribers
  • 208 views

Hi, I’ve just recently been diagnosed with JAk2 and ET. I am confused with the conflicting information I have received. In the booklet I was given on MPN’s it states bone pain as a common symptom however when spoke to my specialist they said bone pain is not associated with Et. Does anyone else suffer with bone pain in their lower back? If so what medication do you take for it? 

  • I too am diagnosed with ET and have the JAK2 mutation.  I’ve been experiencing bone pain, specifically when I sit - in my sit bone on the right side.  Makes it hard to drive or be a passenger in any car- not sure if this is specifically related to ET.  Pain has been getting more steady over the last year.  

Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007