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Essential Thrombocythermia

MrsD
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Hi, I’ve just recently been diagnosed with JAk2 and ET. I am confused with the conflicting information I have received. In the booklet I was given on MPN’s it states bone pain as a common symptom however when spoke to my specialist they said bone pain is not associated with Et. Does anyone else suffer with bone pain in their lower back? If so what medication do you take for it? 

  • I too am diagnosed with ET and have the JAK2 mutation.  I’ve been experiencing bone pain, specifically when I sit - in my sit bone on the right side.  Makes it hard to drive or be a passenger in any car- not sure if this is specifically related to ET.  Pain has been getting more steady over the last year.  

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