in response to tvman
I am attending City hospital. My bloods have never been right since I finished chemotherapy for AML. I have been getting lots of infections caused by low white cells so it seems my MDS is affecting my white cells mainly. I am on lots of medication and getting gcsf injections to keep me well. My main symptoms are tiredness and bad temper. The tiredness is due to the disease and the bad temper is caused by the stress of it all!!
Hi Bernadine, firstly if you want to reply to this message from me just click on the reply button below my message and then there's a continuation of the thread in case anyone else wants to join in too. You'll get the hang of the site in time.
You get G-CSF injections, any chance the brand name is Investim, because that's what I take? I inject it into my tummy on Mondays and Fridays. The injection for my red cells is called Aranesp and that's an epi pen type. I take it every Friday. Both injections are to encourage my bone marrow to produce more white cells, in particular neutrophils, and red cells respectively. In addition I take 21 tablets daily for other things like heart, liver, morphine for a severe back condition and also because I have haemochromatosis I take one of the tablets daily to help get iron out of my body. My main side effect is fatigue. To be honest I don't read the leaflets in each packet because I don't want to think I have this or that side effect.
If you click on my name you can read my profile. I have sent you a friend request. You aren't obliged to say yes, it just means we can speak privately.
Take care Bernadine
Tvman x
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