Ruxolitnib side effects

Liz M 3 days ago

9 replies
26 subscribers
163 views

Hi everyone

I have been on ruxolitnib now for over 3 years. Its making me anaemic as well as causing fatigue. I'm struggling with the fatigue as it's have a big impact on my daily life. Had to go on ruxolitnib as I have PV and the itchy skin was unbearable. The meds have taken away the itchy skin completely. I'm so grateful for this but other side effects are difficult to deal with. Couldn't tolerate hydroxyurea unfortunately. Has anyone else having bad side effects? Best wishes to you all x

Naugus 3 days ago

I have been on Ruxolitinib for over a year now. So far I have been doing well my HGB went down in the beginning but came up to 9. This drug does lower your HGB. Have you asked your doctor about Momolitinib?.

Naugus

Liz M 3 days ago in reply to Naugus

Hi Naugus

Monolitnib has never been mentioned to me. I've never heard of it. Can I ask what HGB is please?

Naugus 2 days ago in reply to Liz M

HGB is hemoglobin. Momolitinib is a new inhibitor that is supposed to not lower the HGB.

Sold in the US under the name Ojjaara. I’ve read it comes with its own side effects but with our disease anything is worth a try.

Naugus 2 days ago in reply to Liz M

Another thought. Has a stem cell transplant been offered to you?. I was deemed not eligible due to age.

Liz M 2 days ago in reply to Naugus

Never been mentioned and don't think it ever will. I was refused a bone marrow biopsy.

Liz M 2 days ago in reply to Naugus

Shortened version for haemoglobin. Thanks.

Liz M 2 days ago in reply to Naugus

Was told two weeks ago I'm borderline anaemic but haemoglobin is ok.

Naugus 2 days ago in reply to Liz M

Do you mean a stem cell transplant.

Liz M 3 hours ago in reply to Naugus

No it's a bone marrow biopsy

More from this forum

Ruxolitnib side effects