Hi, I'm new here and had two diagnoses with cancer. My 1st was a rodent ulcer on my nose. (I'm sure another way is growing) anyway that's not what I'm here for today.
My 2nd diagnose is for ECCRINE POROCARCINOMA which I have been told this is a very very rare cancer. Has anyone else got the same cancer I'm trying to find how rare this cancer is. I'm a member of a FB page with 21 members from over the world. We don't know anything much about this cancer. Also my brother died from cancer but my consultant says its not inherited.
Hi Wildcat sam and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and saw your post. I don't have any experience with eccrine porocarcinoma but I have had a couple of different types of skin cancer.
You might find this leaflet from the British Association of Dermatologists helpful as it explains what eccrine porocarcinoma is and how it's diagnosed and treated. You will see that the leaflet also gives a couple of links to other websites which have information about this type of skin cancer, which might help you further.
As eccrine porocarcinoma is a type of skin cancer you might want to join us over in the skin cancer group, which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and any proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Albroon22 and a very warm welcome to the online community
I don't have any experience with eccrine porocarcinoma, but as it's a type of skin cancer you might want to join us over in the skin cancer group, which is a great place to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post introducing yourself and asking your question.
It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
