Sandostatin LAR side effects

Hi Doreen

Im sorry I’m not able to answer your question but any drug has side effects. I’m not sure you will find the answer here as it’s a very Specialist area. Have you looked at netpatientfoundation.org where I’m sure you will find an answer. If not you could contact the NPF Specialist Nurses who can be contacted by email or the Helpline.

Hopefully you are under the care of NET Specialists and should have the contact details of your own NET Specialist Nurse

Let me know if I can help further 

Hi, my husband has Sando injections every 3 weeks. He also gets dreadful nausea, headaches & runny nose that seem to last for days! Needs to be close to a toilet the first 48 hours is a must. He switched from Lanreotide to Sando as that was worse, but everyone is different! 

My husband does take anti nausea drugs x 3 daily & strong pain relief which also helps the headaches a bit, but was prescribed for the tumour pains!

Good luck with your next scan 

Thank you for taking the trouble to reply.  Your poor husband sounds so much worse than me so I will stop moaning!  All we can hope for is that the pain and discomfort is worth it in the long term.

Best wishes.