Hi all, I was doing really well, I had 6 cycles of treatment and then a date for admittance for my SCT. Unfortunately on the date i was due to be admitted i received a phone call from my consultant cancelling my attendance stating that there was too much Covid in the hospital and that after a meeting of senior staff it was deemed dangerous for the procedure to continue.
I was told that I would provisionally be given a future date of 2 weeks in the future. This was a massive blow to me mentally, i had emptied the freezer put all outside furniture sway and had my bag packed, all to be cancelled . I asked about further treatment and again i was told that 2 weeks was ok but any further delays would result in me having to start another full cycle of treatment.
I now need another Covid yest prior to being admitted i a weeks time if the timeline goes according to the consultant. It has taken me a week to come to terms with the cancellation but now realise the professionals were correct in their decision to postpone my SCT.
I am now starting to prepare for my Admission again with some uncertainty, and as i have previously stated I am in the Spanish health system and have had no contact with my consultant since my cancellation phone call.
To put others at ease the hospital I refer to is the main hospital in Santa Cruz, Tenerife. Sounds as though Covid may have returned with vengeance.
Heres hoping for no more setbacks, and especially not a further cycle of treatment.
This message is more to get my frustration out rather than ask for assistance from the group.
Thank you hope it isnt as critical in UK.
Hi again, and we all understand the frustration, even on the NHS I was knocked back 4 times, with bag packed etc, and as you say its the mental preparedness that is hard to overcome, mine was due to bed availability !
all i can say, if this helps at all ? it is worth it, i am now 120+ days post stem cell transplant, and besides some neuropathy and hip pain, its good, i am back walking my dog, washing cars, cutting grass, still get fatigued so please listen to your body, dont fight it, take a nap ! on in hospital recovery i was in for 10 days, first 5 high care due to a severe stomach problem, but it passes, i got up every morning and got changed, walked around as much as you can in a room 10 foot by 10 foot we all wish you well, and let us know how it goes for you, best wishes Kevin
Hi pleased to say i have neen admitted to ward today 25th July for SCT
24th July, i dont know how to Edit
that is good news, the SCT not the edit gaf, hope all goes to plan and you get comfortable, it can be a slow recovery, time is on your side Kevin
Inspired lad of Pelham good to hear you have a ‘go’ date.
Preparing for going through the time in the SCT Unit is important so this ongoing post in our dedicated Stem Cell Transplant support group is a place where group members have collected the things that helped them go through there time in the SCT unit - Checklist for SCT Unit and the second link is taken from a Lymphoma site but again has some good first hand tips for the SCT process Top tips for stem cell transplants
To edit a post go to ‘More’ then ‘Edit’
Had my SCT on 26th July now on day 3 and all ok bloods. Pressure, temp,and all tests however evry doctor that has visited me has said day 5 is the fay when things occur. The dieticians have seen me and told me food supplements are available on day Five if my mouth and throat are too swollen to swollow.
So heres to day 5. And then apparently day 9 you souls who have been through this will probably know what i am talking about. But i had no idea until i was admitted.
Will make contact on day 5 with the outcome
Cheers
Good luck , I went through sct apprx 50 days ago , non of it is easy , but hang on , we will all get through it.It is such a relief to get home after your ordeal.
Best wishes , Mal
Is there an easy way to put this in the Stem Cell Transplant forum
Hi Inspired lad of Pelham ....... no easy way....... just kick on this link below......
......... and start a new thread in the group [+ Create new post] or [ + ] in the top right of the group page.
You can copy and paste any text from this thread into your post in the SCT Group.
I think I have said before that I had no mouth and eating problems during both my Allo SCTs....... so don't fret this....... if it happens it happens....... if not, then you have wasted energy worrying about it.
Hi, yes I had SCT In September last year. Very tough going, not easy at all, but one day you will turn a corner, mine was day 12, and I just got better and better each day. And you will go from strength to strength when you get home. Hang in there, good luck and take care•
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007