I’m new to this. But was hoping someone could help. My Mother in law has just entered the palliative care stage, she will be living with us until we can no longer cope with her care. But I don’t really have any idea of how long this could last. I’m trying...
Hi everyone, I was diagnosed with MM 2 years ago, At first I was OK, not really taking it in fully, just put it to the back of my mind, I am fortunate, at the moment I don’t need treatment just 3 monthly blood test followed by a phone appt, I have never...
Hi I am new to this group and wanted to say hello I was diagnosed with smouldering myeloma in December last year and really not sure of where I am at !! consultants nurses everyone all so so lovely but to be honest I feel like a bit of a fraud because...
Not sure how to tell our own kids
I was diagnosed with smouldering myeloma in November 2021 and this was a great surprise to myself and family and I felt my world had ended !. I also have back problems and Type 2 diabetes. I have 3 monthly check ups for blood results .. these have now...
Hi I was diagnosed with Myeloma in September 2022 , I have currently had 16 weeks of chemo and had stem cells taken last week and awaiting transplant . I’m very anxious about the next stage .
My Father is 84 and has dementia is deteriorating rapidly . His myeloma is stage 4 . He had 13 cycles radiotherapy 3 years ago and has recently had five sessions of radiotherapy to his head . My Sister and I must decide if he goes through chemotherapy...
Hi, I’m new here, diagnosed with multiple myeloma in October 2022 out of the blue after starting to fall over! I’d be interested to hear from anyone newly diagnosed or experience of autologous stem cell transplant which I’m waiting for. I’m 62, mom of...
Hi everyone. You can call me Algorithm. I am 49yo, male, and I live in the north-east of England. So a few weeks ago I started having a very bad back-pain not triggered by any particular activity that doesn't go away. I went to my who GP prescribed...
Hi all, Diagnosed 2 weeks ago with multi myeloma and had it confirmed today. Still awaiting scan but treatment starting in 2.5 weeks. Doctor and staff were really good and understanding and despite being anxious made me feel a bit more at ease....
