Hi everyone, I was diagnosed with MM 2 years ago, At first I was OK, not really taking it in fully, just put it to the back of my mind, I am fortunate, at the moment I don’t need treatment just 3 monthly blood test followed by a phone appt, I have never had a ftf appointment with a consultant but I’m not too worried, if my blood protein changes significantly then I’ll probably have to see the consultant, what I wanted to say was although it’s over 2 years since the diagnosis it has taken me this long to actually enter this forum, probably some sort of denial I suppose. Unfortunately my wife also has been diagnosed just 3 months after me with MM she gets to see her consultant who happens to have a clinic in our community hospital she like me just has blood tests 3 monthly. Both of us are “fine” with the diagnosis and talk openly with friends and family. It is slightly difficult for my wife as she is Thai Albert a British citizen so most of her family live in Thailand. Please forgive the length of this post, I just needed to say it out loud perhaps to convince myself. Thank you.
Hi JenksB I see that you have been a group member for a few years and it’s good to hear from you again….. it’s rather unfortunate but at the same time that your wife has also been diagnosed with MM…… and it’s remarkable the differences in how consultants provide support.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.
Navigating the journey can be difficult at times.
Do rennet that the Macmillan Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out.
We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
…… bend the groups ears any time 
